My hair has been back two years and have never forgotten how awful it was living with alopecia.

Which is why I'm worrying because all of a sudden I'm getting an intensely itchy scalp followed by a bald patch.

I can handle the odd bald patch but is this the start of another awful period in my life?

Views: 1481

Comment by Marie on January 4, 2015 at 11:23am
With scaring alopecia they don't grow back so it may not be an option
Comment by Liz bell on January 4, 2015 at 2:24pm

This is my third time for my hair to fall out, and every time it does it itches right before it does fall out 

I have got to know that when it itches real bad that means it coming out again.

Sorry I can't be more helpful but I have found truth is better than false hope. 

Comment by itzmejudy on January 4, 2015 at 3:29pm

Does anyone know how to calm the itching until I can get my Dermatology appt.? I have tried anti itch shampoo (T-gel, Head n shoulders). It is driving me crazy..

Comment by steph on January 4, 2015 at 4:31pm
Thanks. The steroids are quite good, as is dermol topical steroid. What people don't understand is the heartache or desperation involved. Or that all these things take their toll on your self esteem and emotional wellbeing. I've been meaning to blog about it but Havnt had the courage, instead burying my head in the perverbial sand, as if by denying it, I might one day wake up and find it a terrible nightmare. Sigh.
Comment by itzmejudy on January 4, 2015 at 6:10pm

You are right Steph. One day I think I am ok and the next day I am in tears. Iput some over the counter cortaid cream on and it helped alittle but then what little hair I have looks all greasy so I am stuck in the house. I still can't get myself to put a wig on and go out.I know that everyondy yet. The reality sucks and the depression doesn't help. I hope once I see Dermotologise will know I have a wig on and make fun of me. Not very adult of me is it? I just have to make myself do it but not reat things will get better but I know there are no guarantees. Thanks for letting me vent.

Comment by Tracyhah1026 on January 4, 2015 at 8:48pm
I believe that each case is different. I've read about some losing all their hair and some having spots that grow back. Jazzy's grew back. Even though we were using the steroid cream I don't think that's why it grew back on its own. Jazzy lost her eyelashes a yr before we knew she had it but they grew back before we noticed a bald spot on her head. I don't think we can let it defy who you are and what you want to do in life. Keep your head up and try not to let it get you down. Blessings Alopecia World!!!
Comment by Mommito3 on January 5, 2015 at 11:38am
My doctor prescribed a shampoo for me to use. It cleans the scalp. I've had good results using it. My hair has been falling out as well at a rapid pace. The Dr also told me to use loreal shampoo for hair falling out. Wishing you the best of luck!!
Comment by steph on January 5, 2015 at 6:17pm
@itzmejudy, hang in there. We are each on our own personal journey and unless you can say first hand that you have walked in our shoes, all the 'chin ups' in the world just feel hollow. It's not about being 'grown up', it's about finding what gives us the strength to get up and face the world. If I had the answers to how we can patch our broken self esteem id be an international guru on the speaking circuit! (Next year maybe ;)) xx
Comment by itzmejudy on January 5, 2015 at 6:43pm

Steph  I wasn't talking about others, I was talking about myself and how I am dealing with things. I cannot tell others how to handle their problems. All we can do is talk about what does or doesn't work for us. I am not telling anyone chins up except to myself. I was just venting about how I felt at that moment. I was saying I need to grow up not anyone else.. I am sorry if you misunderstood. The only part that was to you was "you are right" and the rest was about me.. Again I am sorry you misunderstood. 

Comment by steph on January 7, 2015 at 5:08am
I'm sorry, I think it's a misunderstanding, I was talking in general terms, and simply offering support. I'll remain silent as that would be safest. I think the process is difficult enough (I'm talking about this from my personal perspective to clarify) without me causing others anxiety through misunderstandings that are unintentional. Best I keep my thoughts close to myself and return to being a non participant. Sorry for the misinterpretation.

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