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'Looking at my sister, I saw my loss'
Mailonline.com, had an interesting article about twin, in which one had alopecia and the other did not. Below is an excerpt:
“As girls, they insisted on matching outfits, right down to the ribbons in their blonde pigtails. And as teenagers, identical twins Gwennan and Elin Thomas were inseparable, even going to the same university.
‘We were, and are, best friends,’ says Gwennan. ‘I had a freckle on my forehead as a baby – which disappeared – and that was how our parents told us apart. Looking at some childhood photos, we still argue about who is who.’ Yet, in 2002, a shocking, inexplicable event would mark the sisters apart. That year, Gwennan, then 25, was diagnosed with alopecia.
What makes Gwennan’s experience extraordinary is that her identical twin sister Elin remains completely unaffected, even though the sisters share exactly the same genes.”
Gwennan goes on to say “'Looking at my sister, I saw my loss”
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Do you ever feel that way when you look at other members in your family that seem to have many similar traits than you? If so, how do you deal with the feelings?
Source: MailOnline.com
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Comment by You can do it : ) on September 8, 2012 at 9:14pm
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I have a twin though he is a boy so it's not so bad. But I have these feelings a lot and I just try to tell myself over and over again that alopecia areta makes me stronger and helped me become who I am today. Though it still gets tough at times and it doesnt help to tell myself those things.
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becaue everyone has their down moments
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Comment by Baldilocks on September 11, 2012 at 9:17am
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I have two beautiful sisters with luscious locks. I envy them daily for what they have. I hope to overcome my feelings of jealousy but it's just so hard! I guess I don't deal very well with my loss at this point in time.
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Comment by Casey on September 13, 2012 at 9:34am
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This was a nice story, but I have a huge issue with her saying her friends were "insensitive" when talking about their bad hair days. Ive read comments from people with Alopecia a few times in articles and books that say similar things.
It would actually really bother me if my friends felt they had to tiptoe around me because I have alopecia. Just because I am bald doesnt mean your bad hair day doesnt make you feel bad! I love that my friends treat me like a normal person! I love to play with or even dye their hair for them. We are all different in different ways and we choose to embrace it.
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Comment by Cheryl, Co-founder on September 13, 2012 at 6:13pm
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DeZ , "You can do it" and Baldilocks, I think alopecia makes us re-examine what is beauty. I know I haven't changed in looks drastically since my hair loss, but my attitude and beliefs have shifted. Sometimes it is a just a matter of time for that adjustment to happen and for us to seriously challenge our attitudes and beliefs about what we think about ourselves.
Casey, I would have to agree with you. I no longer find it offensive or am hurt by "bad hair day" comments. In fact, I usually jokingly respond with things such as, "Boy am I lucky, I don't have to worry about a bad hair day". How it looks today is basically how it will look when I wake up or any other day ;-)
I remember when I was first diagnosed it was when braid extension where just becoming popular, my sister had her hair braided and I was very envious. Or when we were invited to wedding or other formal events and the women in the family would go to salons and coming out looking spectacular. At that time I really felt "under-dressed". But I must say over the years I have really grown to like my bald look in formal settings. It has a distinction that I like. In fact I am going to a wedding this weekend and can’t wait to dress up ;)
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Cheryl, I also wanted braids when they were in! Maybe it was a blessing in disguise, because that would be embarrassing now. I wear a wig and I like to curl it for special occasions! Youre pretty awesome for going bald :)
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