Comment

Comment by Trish on October 9, 2010 at 3:31pm

Hi Tallgirl, Thank you for responding..I have heard that aloe works very well for soothing the scalp, I am def gonna look into that..Yes, I do believe you can ask a Pharm for free..

Comment by Tallgirl on October 9, 2010 at 11:22am

Aloe from a plant has worked on burns for me, and Domeboro tablets soaked in water and used as a compress have, too, when I had an allergic reaction on my face years ago. Can you ask a pharmacist for free?

Comment by letcia Parga on October 8, 2010 at 11:58am

hey sorry for responding twice I didn't realize they had to be approved to be posted and forgot I wrote one already

Comment by letcia Parga on October 8, 2010 at 11:56am

Hi trish , no never tried topical creams my insurance doesn't cover them . My dr says the craems doesn't gets the scalp deep enough so has little success . I have noticed regrowth but then hair I am due to go back for another set on the 14th . I'm just lucky I have only one spot to try to hide .Immediatley after the injections I was extemeley itchy almost unbearable and my boss even noticed at work and told me to stop itching cause its making it worse .

Comment by letcia Parga on October 8, 2010 at 4:45am

yes I have had growth but slow and I avoid lookiing at it all the time so I can't really tell if it's growing . Neve tried topicals cause my insurance doesn't cover creams . Also noticed my regrowth hair is really fine and a few are white . But I'm just thankful there is regrowth and that I havae only one spot it could be worse . I have really thick hair so I cover it well no one would beleive how big it is unless I actually showed them .

Comment by Trish on October 7, 2010 at 11:28pm

Hi Letcia, Thank you for responding..Yes, I myself feel like I am going crazy dont know how much more I can take..Have you tried topicals or just went straight to the injections? So, your side affect to the injections are tender and itchy? and have you noticed any growth since you have had them or it getting bigger?

Comment by letcia Parga on October 7, 2010 at 11:21pm

to trish , Hi I think I can actually say I know exactly what you are going through . I was diagnosed with AA about five months ago . i devloped a huge spot basically overnight . It has lest me sef concsious about my apperance even though you can't see the spot unless I show you . IT is about the size of a half dollar and was getting hard to hide . The more hair I would see fall out would pu me in this dep dark depression and I almost felt like I was going insane . Luckily I have a wonderful doctor who is loving and understanding cause on those bad days I could go to her and she would get me out of work intill I felt like could deal . I am now recieving steriod shots and they seem to be working , i guess . I do notice after the shots I am alot more tender and itchy . I take some meds for anxiety , but stir away from the antidepressants cause they made everything worse including my hair loss . my advice to you i to take it one day at a time and thank god for every day he gets you through . You could have it worse like .. death .

Comment by Heather L on October 7, 2010 at 10:43pm

Hello Chefpam!

Yes - I am aware of that. And of course have concerns about the length of time I've been using Olux. However I have talked in detail about this with my doctor. The doctor believes that although a topical steroid is absorbed through the skin that the amounts are so low that it is not a big concern. In addition - I do get cortisol tests .... hoping to monitor levels in my body to be sure I'm not putting myself at a high risk for any adrenal conditions/diseases.

I've thought many times about stopping it.. .and just let what will be... be. But so far I am not brave enough-- I am terrified of going bald. But if I were to start having any other physical symptoms or condition appear I would stop the Olux. So far so good.. .and it does work.

Also - for what it is worth my doctor says that the amount of absorption from a topical steroid is not even comparable to taking prednisone. ( even stated that it's not close to those who use inhalers...) If you have the inclination to mention this to your doc - it would be great to hear a second opinion! She also said that the first sign that I was absorbing to much would be scalp atrophy. ( which I do not have)

Comment by Chefpam on October 7, 2010 at 8:51pm

Hey Heather. I was told that prolonged use of steroids can lead to Cushings Syndrome. I am surprised you have been using this for 7 years. I asked my dr for a prednisone pack and he wouldn't even agree to that. I have to wait a month to get in to see a derm......

Comment by Heather L on October 7, 2010 at 4:18pm

Hey Trish-

So Sorry!! I do agree it's always a good idea to contact your doctor with your concerns.... so give him/her a call.

I did want to chime in and share that I LOVE OLUX! Think I am addicted to it... I freak when I run out.
I've been using it daily for 7 years and have never had a problem with it. One common reason Steroids (
which Olux is...) are prescribed to help with irritation and redness... inflammation in general - so I'd be
surprised it that is the culprit behind what you are experiencing. Also I don't think a month is enough time
to give it to see if it will help you or not... my doc. always says for anything new to give it three months.

It is a strong steroid - and made for scalp use only - so it can cause acne on your face/neck- so be sure to not let it run.

For me - and I have had AA off and on for 20 years now... redness, some minor tenderness and on occasion
itching occurs when I am getting a new spot or my AA is very active. My doctor tells me that it is the
increased white blood cells "Attacking" the hair follicles. Basically the inflammation that occurs from the
AA itself.... and for me the Olux helps to calm it down.

Unfortunately the Olux cannot help new spots from forming!! It has helped mine spots to re-grow hair more quickly and helps to control the size of the spots.

Just a thought for your discomfort... when I do have a very sensitive spot ( redness/itchy) I find either aloe or neem oil very helpful. ( caution the neem oil works very well but is stinky & messy!!! so I'd try aloe first.) I actually have an aloe plant in my sunroom and I just break a little piece off and rub it all over the spot -- not sure if there is any difference between using aloe directly from the plant or in lotion or gel???

• ‹ Previous
• 1
• 2
• Next ›
• Page