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My alopecia story in pictures (Part 3)
March 2012
I am now head shaved and getting permanent make-up. I have also noticed I now lack arm and leg hair - so there are a few perks to alopecia universalis i guess
I decided that if I was going to get brave and try to go wigless and scarfless then vacation in the Caribbean was a good place to try it out. I still wore my wig to dinner every night though ...
After 4 months with this longer wig and it's itchy lace front I decided I was over my long hair and in April 2012 I bought my short wig. I was very, very happy with it. No itchy lace front. Bangs to cover the hairline. It was sometime later that spring that I had to start wearing false eyelashes.
In March 2012 I managed a severe cooking burn on my forearm and rushed out to the Urgent Care clinic near my home. I realized when I got there that I forgot my wig. The clinic staff's lack of response made me decide to go wig free at the baby shower I threw that night. My co-workers were so positive that I decided I could do this! This summer was very hot and I was outside a lot so aside from work I usually went wigless and scarfless.
July 2012
Aug 2012 with my step-dad
Now I alternate between my scalp and short wig. I am planning to cut the lace front out of my long wig and cut long bangs into it so I have another option since it is no longer a "secret" I was wearing a wig. Sometimes I go to work without my wig. Now with winter coming I will probably have to wear it so I don't freeze. I still get a few hairs on my big toes (Thanks God) but no other shaving is required. I am usually fairly positive and am able to appear confident. Sometimes I lose my composure. Sometimes I get sad. Sometimes I worry that my son will be embarrassed of me someday. Sometimes I cry. Sometimes I pray with all I have that it will grow back. Sometimes I hope it doesn't (I actually don't enjoy fixing my hair!). I would like to get my eyelashes back. I don't care if I never have to shave my legs again. I think it sucks, but then I am happy I am not really sick. It has made me less judgmental of others flaws and style choices. It has made me kinder and more thoughtful of others. Sometimes I think God just wanted me to step outside my shallow box and see beyond the skin. I was not a bad person before. I was outwardly kind but sometimes mean thoughts came across my mind about someone's physical appearance. I realize now this is so unimportant that I don't even notice anymore and I am quick to stick up for someone when a snide comment is made based on appearance only. I went to Alopecia websites and saw women who were drop dead gorgeous and completely bald and I knew I could live with this. There is one picture on this website and it says "I am not sick. I am only stronger". I hope she is OK that I put that here. All I know is that her picture spoke to me. It gave me courage. I hope this story can help someone else like other women's stories and pictures have helped me.
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Comment by Pat on September 15, 2012 at 6:39am
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Your photo journey to AU has been fabulous to follow. I wish I'd done the same but at the time I know I was too traumatized to be that organized. I admire your courage so much!
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Comment by BTB (John) on September 15, 2012 at 7:22am
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I agree with Pat a well written chronology of alopecia.
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Comment by kymkym on September 15, 2012 at 11:26am
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I am so moved at how you broke your story down in stages. Your feelings are raw and so real.
There was no way I could view this journey of yours and not leave a comment.
Hold your head high. You have NOTHING to be ashamed on.
Much love.....KYM
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Comment by Debs on September 15, 2012 at 12:28pm
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Thank you so much .. your photo journey has taken away a lot of the fear I am experiencing of the unknown. You are an incredible lady with inner and outer beauty. Deb xxx
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Comment by Sophia on September 15, 2012 at 3:05pm
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What a beautifully written story. You are such an inspiration. But really - who needs hair being as gorgeous as you? :) great blogs. I know it will be a big to many, many girls on here.
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A big help I meant:)
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Comment by Angela on September 16, 2012 at 3:22pm
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Again amazing! Loved your journey through pictures and thanks for sharing. Your are beautiful!
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Comment by Casey on September 17, 2012 at 11:31am
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I want to save this because I took no pictures of losing my hair, but it pretty much followed the same pattern as you! I hated my first wig too. There is a whole learning curve on that one!!!
AND I AGREE- WHAT IS UP WITH THE TOE HAIR? haha I have AU but I have toe hair, knuckle hair, and armpits. totally sucks. If I grow hair on my legs I am going to lose it!!!
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Comment by Dani on September 17, 2012 at 3:59pm
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Wow thank you for sharing you story and photos. I'm touched by your honesty about the lessons you've learned from your journey. A really inspiring, interesting and helpful blog.
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Comment by ASRN on September 17, 2012 at 9:13pm
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haha - I know me too!
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