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Comment by stillhairlessat56 on May 5, 2015 at 3:17pm

Hello,my name is Gary....My hair started to fall out at your age.I also was pick on,bullied and made fun of....uDon't let the ignorant get to you.Your true friends will be there for you.After you graduate from school everyone matures and that will all stop.Some of those bullies just may become your best friends....God created a beautifull girl when he created you.I can tell you that later in life you will meet that special guy,have a normal life and will have normal children.They don't totaly understand the disease yet but it isn't inherited and you're kids will be fine.I am now 56 and have a son who's 35 and a daughter thats 30.I does get better and will find a cure down the road....You are a very beautiful youg lady.Your parents love you as you are.!!!!You are the daughter they always wanted.I'm no 56 and wouldn't wan to do anything different.You hang in there and keep your chin up.....If you need to talk look me up,,,,,it does get better.....Gary

Comment by paula on May 5, 2015 at 3:03pm

can't lie either.....alopecia can suck!  however, now that i'm old  ( 60 now...lost my hair at 28 and was engaged when it started falling out!).....but i have "grown into" accepting it.   people are going to be cruel, nosy, and annoying about it...no doubt.  but also, they can be incredibly kind, supportive, and nurturing.  unfortunately, being a teen is hard enough without alopecia.

i know it sounds trite, but here was my mantra when i was struggling with my hair loss.

1)  i'm not ill, i'm not dying,it's just hair.

2)  how can i stop self pity and begin to help and educate others so they don't have to suffer like i did?

3) find a support group.  stay on this site....it can be SO comforting to see how many of us struggle with this.

4)  be honest and open. if people ask, tell them!  it's called alopecia, it's not contagious, and it's not life threatening. it could be worse.  your honesty will help educate the ignorant, or educate the curious.

5) beg, borrow...( don't steal) but get yourself the BEST wig you can afford.  i do love the internet options for a new look or to give my good pieces a rest, but look up "freedom wigs".....there are other companies but i find them to be the best.  the cap is custom made to fit your head only....it's a vacuum piece so if some idiot ( has happened to me) decides to tug at your hair.....it won't budge a micro-inch.

6) get the alopecia world catalog.  it is full of wonderful stories, gives you info about conventions and support groups ( i belong to "bald girls do lunch")   ...a great group...lots of bonding, laughter and tears.....

7) talk talk talk.....figure out to help others in your shoes.  you do NOT suffer alone.  we are all in the same boat, some of us are sailing in varying directions, but at the end of the day, we are all with alopecia.

8)  EVERY day look yourself in the mirror and say...i am NOT my hair.  i am beautiful  God didn't choose me to have this, but i will pray that i can find out what it mean, and how i can give back to others who are in need.

YOU ARE BEAUTIFUL and YOU need to believe it.

good luck.....you will be fine.  give it time.  one day you will be like me and never even give alopecia a second thought.

Comment by Kim on May 5, 2015 at 2:55pm

All I can say is YES alopecia sucks! I lost all of my hair just over a year ago and there isn't a day I don't hate it and wonder WTF? Why me? Super hard during the spring/summer...wearing a wig is not pleasant in the heat, when hiking and I miss swimming! Okay, that being said...what are you going to do? You're right, being 16 and having this is a massive bummer. I am not a teenager, I'm 51 and have step-kids a bit older than you, but I'm not old (even though 51 sounds old to a 16 year old!!) and all I really want to say here is I feel your pain. I get depressed, just cried up a storm the other day. But, I have friends and family that love me as-is. I tell who I want and the others don't need to know. You just get up and do it each day, put on that wig. And I'm sooooo thankful I found a fabulous stylist that I work with to get good wigs and who knows how to color/cut and help me care of my girl. Hang in there Autumn (lovely name, btw), it is what it is. It sucks, but that's the fact of the matter. Talk to someone about the depression..don't let that go unchecked, can wreak havoc if left to its own devices! I wish you didn't get bullied, too. F*ck 'em! Hopefully that's in the past! Okay, just wanted to say I hear you and hope today is okay! Positive vibes from Seattle!

Comment by chrispc on May 5, 2015 at 2:51pm

I lost all my hair during jr high and highschool as well. I don't think I can even articulate how badly it affected me because I was so overwhelmed by it all. I just kind of sank into myself and couldn't express anything to most people. I'm not sure if this is something you want to hear, but I want to mention it either way, from my perspective as a guy, I feel pretty certain that no guy would think of you as ugly because of your alopecia. I mean you're still going to get looked at, but ya know, that's alopecia, can't really get around that. You're not alone in this though, I hope you know that, there are other people out there including myself who deal with this and we won't miss an opportunity to say something kind. In my experience most people aren't extremely irritating and will be good enough to talk to you and eventually their goodness will make you feel less alone. :)

Comment by Debashish on May 5, 2015 at 2:47pm

Hello autumn.. i really understand your pain and the situation u going through. even i ask god why me? from lasy six years i am wondering why me? but still didnt lost my patience and still fighting with this alopecia. i tried many options to get cure but nothing worked out for me. i dont like that people look at me like or stare me as if i am someone from different world.. i literally lost my confidence. you know what still i am under treatment.. doctors are experimenting on me.. but anyways i still have the hope that one day i will get cure up completely.. at least before my marriage.. i dont want that a girl when she look at me will get scared. i can not tell you how pathetic situations i went through. even people make fun of me. i just sit inside my room and cry a lot.. but i am so hopeless i can not do anything. but still regaining courage to fight it.. so i ask u to be strong enough and try to deal with it.. because we r different.. thats true.  

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