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Comment by Hopehopper on June 4, 2015 at 9:11pm

Hi Julie,

I know your post about the aldactone is a few years old now, but did you ever find a regimen of treatment that helped? I hope things are better for you now as time has passed. 

Comment by Stephanie on February 27, 2010 at 7:37am

Hi Julie. You've definitely come to the right place. What I understand is that the eye focuses on ANYTHING different about a person, and that could be a mole, a piece of parsley on your tooth, striking colored eyes, etc. I had an accident years ago and there was a scrape on my forehead and EVERYONE glanced or stared at it even while driving my car. I remember wondering what it would be like for someone who had a permanent mark (oddity, disfigurement). Even the first time you hear an unusual name you react to it. It's more an impulse than an attempt to be cruel. The people who know you and care about you will no longer "see" it. My family and friends don't even talk about it with me anymore besides an occasional "How are you doing?" I wear a wig and they have come to think of it as my hair.
I don't know much about your condition but since we both have hair loss I can certainly relate to what you are going through. Figure out what you need to do to be happy with your outward appearance but more importantly try to focus on everything that is good in your life. There's so much more to you than your hair!
:) Stephanie
PS: The first thing I noticed when looking at your picture was you glasses. Perfect shape and color for your face.

Comment by George Ortiz on February 26, 2010 at 9:34pm

Hi Julie,, I know of what you speak i currently have alopecia totalis, My hair fell out all at ounce within a month or so i was completly bald no eye brows to eyelashes no hair what so ever i considered my self to be be tough but i must admit i brokedown and whaled out loud thrashing things total meltdown still hard to cope with 4.5 years latter, I hold fast to the truth that God has a plan for us all, that God has my back and yours too.
God bless,live strong

Comment by Julie G on February 26, 2010 at 8:22pm

Thank you Pat for the warm welcome and support!

Comment by Pat Latina on February 26, 2010 at 8:16pm

Hi Julie, Welcome to AW! I can't begin to tell you how wonderful this site has been for me. You will soon see that here you'll find support, sincere and caring people. I've only been on here for about 2 months (if that) and it has been liberating to know I'm not alone. I think you should do (medically) whatever it is you need to do to give you the answers to help you move along. I know how difficult it is - many of us here do. I will tell you that once you try meds for as long as you decide that would be, only you make that decision. Then, and only then will you be able to take the next step, be it wigs, haircoverings or go bald or both as I am now. I shaved my head only a week ago tomorrow after being diagnose 10 yrs ago. Of course I wore wigs for many of those years. Today I wear a Vaccum Wig and love it. But hang in there - somedays are better than others - and you ALWAYS have all of us here in Alopecia World.

Comment by Julie G on February 26, 2010 at 3:40pm

Thank you very much Devin!

Comment by Devin on February 26, 2010 at 3:40pm

HI Julie,
The first time my hair fell out I lost eyebrows and eye lashes and I remember how tough that was to deal with all of the stares. My hair has grown back and fallen out many times since, but right now it is just spots that can be covered by a hat and I am thankful, but you are not alone here you have a whole world of friends in Alopecia World!
P.S. I know what you mean about the being single and feeling alone, but I think your pretty and I know you will find that special someone soon.

Comment by Julie G on February 26, 2010 at 3:32pm

Thanks Joy for the words of encouragement and the tips for meds! My testosterone levels have been off, so we will see what happens with the aldactone. I already pee alot anyways so we will see if it increases it even more. I always joke that I have the bladder of a pregnant woman anyways!

Comment by Joy on February 26, 2010 at 3:21pm

welcome Julie!! we all can relate. its been 3 years for me with AGA so i know where you are at. i tried aldactone also but it is a heart medication but does help help lower testosterone which produces DHT that causes AGA hair loss. if you dont have high testosterone the medicine wouldnt help so ive been told. it made me go to the bathroom all the time since its a water pill and getting up 4 times a night was zapping me...i would rather find some hair to wear. some people with AGA find it helpful to get a full hormone panel...testosterone, DHT, progesterone and estradiol. i am low in progesterone and use a bioidentical natural progesterone creme. im definitely not a dr but just sharing what i have tried and heard from others with AGA. im searching for the right headcovering and feel like you...i would rather get something now than when its horrible and everyone can see it. you are in good company here. again welcome! blessings to you!!

Comment by Julie G on February 26, 2010 at 2:25pm

Thanks Ron! Hopefully it doesn't =)

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