Alopecia World
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So where do I go from here? How do I feel better about this?
Well, I have been dealing with my hair issues for over 10 years and every time I think that I am coming to terms with it, I just go right back down. I was about to give up and go get a wig and broke down with my doctor this week. She said she isn't going to give up on me. I went from a diagnosis of LPP(lichen planopilaris) to now AGA(androgenic alopecia). I was told that there was a patient that had the same symptoms as me that had regrowth on aldactone. I tried it when I was first having issues and nothing happened. So I guess I am going to give her one more chance and then I think I am done. If I am not going to be able to grow any hair back and I am going to continue losing, then why put myself through all of this?
How do you come to terms with something that people stare at? That people point out to you - like I didn't know!!! That is the worst! I try and hide it as much as I can, but as it gets worse there is only so much that I can do! I guess it affects me more and more because of being single and feeling alone and feeling that no one is interested in me because of my hair. Sometimes it is just too much!
I am glad that I finally found somewhere where people know what I am going through and understand. My family and friends are supportive, but no one really knows what this feels like unless you go through it yourself. It sucks!
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Comment by Tiffany P on February 26, 2010 at 11:41am
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I know how you feel, and i have tried aldactone i wasnt on it long enough to see if it would have done anything, i wasnt to happy about the side effects and frankly didnt want to take a high blood pressure pill with no high blood pressure. I too was feeling like i finally reached the acceptance stage, but then all of a sudden i have been crying for the last couple of days, dont want to do anything and find comfort in chocolate cake lol I will get thru this come hell or high water and so will you but its not going to come over night (not that you said it would) i usually wear scarves everywhere i go and my mom wants to do my hair for me but i am so mad about it leaving me that i soon feel that i will shave it off and get over the torture of washing it and watching it go down the drain. And as far as men, there are great guys out there that dont care so much about the whole hair issue and we will come across them but we have to come to accept and love ourselves first. I know its hard and i wish i could share my cake with you. well have a great day and welcome to AW ! :o)
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Comment by Julie G on February 26, 2010 at 11:51am
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Thanks Tiffany! I could go for some cake today!! I am trying to come to terms with it but it is getting hard. I still have hair on the top of my head and kind of the comb over thing, but if this doesn't stop and I don't get any regrowth - I will be cutting my hair short and getting a wig. I can't stay this unhappy and I refuse to continue to watch it get worse and worse and allow everyone else to see it too. I have my days when I cry because of my hair too. More lately than before though. But I am happy to have found the outlet on here and have found more support! Thanks for your comment and thanks for the welcome!!
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Comment by Ron Brown on February 26, 2010 at 2:24pm
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Hey Julie,
Welcome to Alopecia World where we all share the same 'gift'. ( and hope it doesn't keep on giving...)
Ron
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Thanks Ron! Hopefully it doesn't =)
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Comment by Joy on February 26, 2010 at 3:21pm
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welcome Julie!! we all can relate. its been 3 years for me with AGA so i know where you are at. i tried aldactone also but it is a heart medication but does help help lower testosterone which produces DHT that causes AGA hair loss. if you dont have high testosterone the medicine wouldnt help so ive been told. it made me go to the bathroom all the time since its a water pill and getting up 4 times a night was zapping me...i would rather find some hair to wear. some people with AGA find it helpful to get a full hormone panel...testosterone, DHT, progesterone and estradiol. i am low in progesterone and use a bioidentical natural progesterone creme. im definitely not a dr but just sharing what i have tried and heard from others with AGA. im searching for the right headcovering and feel like you...i would rather get something now than when its horrible and everyone can see it. you are in good company here. again welcome! blessings to you!!
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Thanks Joy for the words of encouragement and the tips for meds! My testosterone levels have been off, so we will see what happens with the aldactone. I already pee alot anyways so we will see if it increases it even more. I always joke that I have the bladder of a pregnant woman anyways!
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Comment by Devin on February 26, 2010 at 3:40pm
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HI Julie,
The first time my hair fell out I lost eyebrows and eye lashes and I remember how tough that was to deal with all of the stares. My hair has grown back and fallen out many times since, but right now it is just spots that can be covered by a hat and I am thankful, but you are not alone here you have a whole world of friends in Alopecia World!
P.S. I know what you mean about the being single and feeling alone, but I think your pretty and I know you will find that special someone soon.
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Thank you very much Devin!
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Comment by Pat Latina on February 26, 2010 at 8:16pm
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Hi Julie, Welcome to AW! I can't begin to tell you how wonderful this site has been for me. You will soon see that here you'll find support, sincere and caring people. I've only been on here for about 2 months (if that) and it has been liberating to know I'm not alone. I think you should do (medically) whatever it is you need to do to give you the answers to help you move along. I know how difficult it is - many of us here do. I will tell you that once you try meds for as long as you decide that would be, only you make that decision. Then, and only then will you be able to take the next step, be it wigs, haircoverings or go bald or both as I am now. I shaved my head only a week ago tomorrow after being diagnose 10 yrs ago. Of course I wore wigs for many of those years. Today I wear a Vaccum Wig and love it. But hang in there - somedays are better than others - and you ALWAYS have all of us here in Alopecia World.
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Thank you Pat for the warm welcome and support!
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