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Me too! Your not alone, if that helps you any! I have done the AA dance for 27 years, it didn't get to the point that I had to wear wigs or hats/scarves till the last 8 years. In the last week I have set myself free from the AA dance (hair, no hair, hair, no hair....) I shaved my head, threw out all the topical steriods, stopped doing the injectables. No wig, just a hat for now, when I go outside. I am waiting for my courage to catch up with me, I want to be me without wigs and hats eventually, we all need goals, right?! Let's face it, there will always be people who stare, maybe they are just staring because you are so beautiful! Think positive, most the time we are the only ones that are really bothered by Alopecia, but the stares hurt just the same. Hang in there!
Mercedes, I know the feeling. But, if there is one thing I learned is that we will never be able to control what other people do or think. So, I "expect" the stares, and the occasional comments. My job was to figure out how to get to a point that I no longer cared if they stared or not.
50 years with (and sometimes without) alopecia for me. I do the opposite of Tamera, and wear wigs, scarves or hats in public.
When I was in high school, no one ever knew I had hair loss, as I pulled my forehead hair up over a half-wig and secured it with a large barrett. I changed to a full wig when the hair in front started falling out. Living without stares or questions helped me to get through high school as a normal, active, creative kid! I wore scarves and granny caps to bed in my college dorm, and by 20, my hair grew back (for fifteen years!).
You are beautiful and you are not alone! I have AGA so unfortunately, my hair loss is permanent. I guess that might be considered a blessing for some. I'm sure it is very difficult to experience AA. I shave my head, and I know what you mean about the stares. I just tell myself that I am going out in public bald so that maybe one day in the future, another woman won't get any stares. Hang in there! We are here for you.
Hi Holly, Many of us are trying to make the difference. But it requires our participation. It is only within the 5-10 years that people have really been willing to show their alopecia out in public. I know that Mary Marshall, started International Alopecia Day, for the reason. Each of us can do our part in education the people around us. I know I have had alopecia for over 20 years and I find that I seldom have to explain to people what alopecia anymore. When I was first diagnosed it seemed that nobody knew what it was.
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