Thought I would give everyone an update on my status incase it may help in some way. :)

It has been about 4months since I was diagnosed with LPP (scarring alopecia) and started my course of medication and treatments. They say that we have caught it early on, although I am at the point where I need to do strategic combovers and hours of prep to get my hair in an acceptable style. (I am pretty thin on the top of my head and can't do a side or middle part at all any more.)

I am on Plaquenil twice a day, steroid injections every 6 weeks, topical treatment 3 times a week, special shampoo 3 times a week, Aveda natural hair products for thinning hair (conditioner and topical), rogaine foam 3 times a week, fish oil, vitamin d, woman's multi and turmeric supplements.

WOW.

I thought that I had a time consuming regime before! Ugh...it's all soooo tiring!

Anyways, every time i see my hairdresser, she claims that I have lots of new growth. I can see it myself. I think that the Aveda products are really helping the sides and back. I am too afraid to use it on the top incase I enflame my scalp and the condition. The dermatologist also says that I have lots of regrowth. I am not sure if it is the antinflametory focus or the areas that are not too scarred are reacting well to the treatments. I don't see the scarred part areas growing back at all though. Too late for those areas.

I think I can live with it the way it is and pray that we have stopped it in its tracks. I dream that one day I can relax a bit and not have to worry all the time. Either a bald me or the me I am now.

So, my story could always be much worse and I feel that I am taking in stride and well so far. My approach is to be grateful for my supporters and as happy and as positive as I can be day to day.