• 49, Female
  • Toronto
  • Canada
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Amanda's Friends

  • Lily
  • Casey
  • dmf
  • Devin
  • CJ- Christine from Ottawa Canada
  • shusta111
  • Elaine
  • alamogirl/ aka Judy
  • Laura M
  • Megan Hopkins
  • Trina Berry
  • Barbi Cooper
  • Alison
  • Erika Vincent
  • Carol Yuen

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Amanda's Page

Profile Information

Relationship Status:
About Me:
I am a thirty something woman in Toronto, newly diagnosed with LPP and very scared, confused and unsure.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Amanda's Blog

Update on my medications and treatments - part 2

Posted on August 22, 2012 at 10:30pm 0 Comments


I forgot to add in my last post that I have been suffering from some of the many side effects of the Plaquenil.

Some side effects include, tummy trouble, blue marks on your skin, depression, mood swings, sun sensitivity, vivid dreams and lower appetite. The only ones I seem to be suffering from are sun sensitivity and vivid dreams.

I have always been fair and sun sensitive but boy is it worse now!!! I feel like a smoldering vampire (like on tv) when my skin is…


Update on my treatment and medication

Posted on August 16, 2012 at 7:43pm 2 Comments

Thought I would give everyone an update on my status incase it may help in some way. :)

It has been about 4months since I was diagnosed with LPP (scarring alopecia) and started my course of medication and treatments. They say that we have caught it early on, although I am at the point where I need to do strategic combovers and hours of prep to get my hair in an acceptable style. (I am pretty thin on the top of my head and can't do a side or middle part at all any more.)

I… Continue

What makes you happy and keeps you going during the low moments?

Posted on June 25, 2012 at 8:15pm 0 Comments

Have any small happy moments that keep you going? Today, while driving I saw a pair of sisters, young, beautiful and with lovely hair. Immediately felt sorry for myself untill I saw them share a moment and start was contagious! I smiled and was pulled away from my self pity and shared a happy moment with them. Felt good.

I have the greatest best friend in the world

Posted on June 24, 2012 at 10:00pm 4 Comments

Honestly, she is amazing! When I told her about my alopecia diagnosis, she told me we were together in dealing with it.

She bought me clip in extensions that are red and blue to show me that while I still have some hair, I can be stylish. She listens to my fears and complaints with no judgment. She buys me cards telling me I am beautiful. She texts me words of encouragement. She bought me a little donut looking thing that I thought was a shower body scrubber and it turned out to be a…


Comment Wall (7 comments)

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At 4:25pm on September 20, 2012, Elaine said…
I haven't gone all the way to wigs. Day to day I can still hide it. It doesn't look good but no one notices I have a problem yet. I do wear my short blonde wig on vacation so that I like the way I look in photos. I like the way that wig looks its 100% human hair but I don't like how it feels. It's too big so it moves around a lot not an every day kind of wig. In 20 days when my full lace wig comes I am going to make the change if I like it. I ordered a human hair full lace wig it's a total different hair sytle then I've ever had. But I figure if I can't have my hair I will buy the hair I always wished I had :) Not sure if I'm going to shave yet I will see when the wig comes. That's good you can still hide yours! Is it on growing stage or falling out? I hope its growing! I'm on a falling out stage :( When get down about I just remember it can always be worse.
At 4:18pm on September 18, 2012, Elaine said…
Hi Amanda, sorry I didn't comment back sooner! I just noticed this comment from you. I'm doing well. A lot going on right now I just had jaw surgery and now I'm decided on if I'm ready to wear a wig full time. I just met one of the users on the site and we went to coffee. It was great to talk to someone in person who's knows how I'm feeling. How are you doing? Did you have a good summer?
Have a great day :)
At 12:34pm on June 30, 2012, Jennifer Krahn said…

Hi Amanda,
Thanks for the add. Hope you are well and enjoying summer. No we don't carry toppers, we strictly do custom vacuum wigs. Sorry, I wish I could help you out further.
Warm Wishes,

At 2:39pm on May 9, 2012, Carol Yuen said…

Hi Amanda,

Nice to meet you. Hope you are having a fabulous day.~

At 3:19pm on April 24, 2012, Laura M said…

Hey Amanda!
Sorry I don't get on here often so I just saw your msg now :)
How have you been keeping!? Hows Toronto treating you?
Keep in touch :)

At 10:51pm on March 26, 2012, Erika Vincent said…

Thankk yoou!! <3 You're too kind!

At 11:28pm on March 19, 2012, LeslieAnn Butler said…

Hello and welcome, Amanda!
How are you today? Let me know if you need to talk.
Leslie Ann



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