Hello,

I forgot to add in my last post that I have been suffering from some of the many side effects of the Plaquenil.



Some side effects include, tummy trouble, blue marks on your skin, depression, mood swings, sun sensitivity, vivid dreams and lower appetite. The only ones I seem to be suffering from are sun sensitivity and vivid dreams.

I have always been fair and sun sensitive but boy is it worse now!!! I feel like a smoldering vampire (like on tv) when my skin is…

Continue

Thought I would give everyone an update on my status incase it may help in some way. :)



It has been about 4months since I was diagnosed with LPP (scarring alopecia) and started my course of medication and treatments. They say that we have caught it early on, although I am at the point where I need to do strategic combovers and hours of prep to get my hair in an acceptable style. (I am pretty thin on the top of my head and can't do a side or middle part at all any more.)



I… Continue

Have any small happy moments that keep you going? Today, while driving I saw a pair of sisters, young, beautiful and with lovely hair. Immediately felt sorry for myself untill I saw them share a moment and start laughing....it was contagious! I smiled and was pulled away from my self pity and shared a happy moment with them. Felt good.

Honestly, she is amazing! When I told her about my alopecia diagnosis, she told me we were together in dealing with it.

She bought me clip in extensions that are red and blue to show me that while I still have some hair, I can be stylish. She listens to my fears and complaints with no judgment. She buys me cards telling me I am beautiful. She texts me words of encouragement. She bought me a little donut looking thing that I thought was a shower body scrubber and it turned out to be a…

Continue

Went to my recent specialist appt and was told I am very healthy and that my blood tests (now required monthly due to Plaquenil) came back perfect. I am in perfect health.

So why do I not feel healthy and perfect?



I know am not alone, there are many (of you) like me and I have the greatest husband and best friend in the world.

So why do I feel like I am in this alone?



I am so inspired by all of you as you shave your hair and face the world in your beautiful wigs… Continue

I wish I could look into the future and see if I will lose all my hair. I really want to know. Should I prepare for the bald me? Will it ever happen? Will I remain the same with the thin hair I have had for about five years? Will I get enoigh regrowth were possible to sustain my natural hair and style?

With all the steriod shots, my scalp is in rough shape with ridges and dents. Why can't I be the cool girl that has always worn funky wigs and therefore wouldn't seem out of the ordinary…

Continue