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I wish I had a crystal ball
I wish I could look into the future and see if I will lose all my hair. I really want to know. Should I prepare for the bald me? Will it ever happen? Will I remain the same with the thin hair I have had for about five years? Will I get enoigh regrowth were possible to sustain my natural hair and style?
With all the steriod shots, my scalp is in rough shape with ridges and dents. Why can't I be the cool girl that has always worn funky wigs and therefore wouldn't seem out of the ordinary with a pretty wig that would mimic my original hair. What am I going to do? Continue with all the tests, drugs and treatments, I guess.
As my eyes well up, I am pretty sure that the thinning continues. I don't want to admit it to myself or others. With scarring alopecia, the hair I lose is gone forever. Forever. Gone. I feel like reinventing my look and life and running away from all the people I know and see everyday.
Having a sad moment. Just needed to share, thanks for listening.
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Comment by Alliegator on May 23, 2012 at 10:53am
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I have been in your shoes! I wondered that all the time, and I would think about what it would look like. We are here for you. This is a good place to share how you are feeling. My suggestion would be to try to not look into the future about going bald. I shave my head now, and being bald isn't so bad! Wigs can be really fun. I will tell you what... most people have NO idea that it is a wig. If you aren't ready for a full wig, you could try out a topper first. I wouldn't stop the drugs/treatments until you feel ready to stop them. For me, at one point, I just had enough of Rogaine so I stopped it. I like to say... cross that bridge when you get to it.
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Comment by You can do it : ) on May 23, 2012 at 5:27pm
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I have had aa since i was 8 and am now 21. I am doing the injections and using drops from my doctor. Depending on the day my hair can either look really good or really bad. The fear that comes with it is unexplainable. Good luck
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Comment by Amanda on May 23, 2012 at 6:52pm
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Alligator, thanks for your support and kind words. I am going to start shopping around a bit. May be interested in a funky wig to cheer me up and make a splash!
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You can do it:) thanks! I does feel better to know that we are not alone. I find that my hair looks different from day to day too. It totally depends and can change you from a good day to a bad day so fast!
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