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Would you do an Alopecia medication study?
I signed up to participate in an alopecia study I thought why not what could it hurt ? I’ve already lost all my hair so there’s nothing to worry about there . But then I think what if my hair grows back? Then I think if it doesn’t help me maybe it will help someone else someone young.Alopecia is devastating for me as an adult I can’t imagine having it as a child or a teenager.But now I’m kind of having second thoughts. I’m kind of worried about the medication I’d be putting into my body .They say there are no bad side affects but who really knows. Would you do it if you had the chance?
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Comment by Mollygirl on January 28, 2021 at 2:00am
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I would give it a try.
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Comment by Karen Grevious on January 28, 2021 at 2:31am
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No way. Immunosuppressing means more than being more likely to get COVID. It opens you up for all kinds of opportunistic infections. Increased risk of blood cancers?! I've been without hair since 2007. Otherwise my health is amazing and I work in an ER, constantly exposed to all kinds of things. I'd rather have my health than my hair.
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I did not realize there were any studies out there being done. That’s exciting! I would love to have my hair back. Tough decision. If this had been offered when I was younger and single I would not have hesitated. I would have risked my life to have my hair again. I probably would do it now if I was living alone.
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Comment by Suzanne on January 28, 2021 at 8:51am
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Maybe
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Yes. I've been contacted a few times in the past. However the trials offered were 50 to 100 miles away.
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Comment by CHETZEL69 on January 28, 2021 at 9:48am
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I have been enrolled in a trial for a drug from Pfizer. I have been on it for almost a year now.
I was AU for 4 years before starting the trial. I had very fine peach fuzz on my head when I started the trial.
Within the first 3 months my hair started to grow and become thicker. After 6 months I had 95% growth on my head. 30% on my eyebrows. Still no eyelashes and no hair on the rest of my body. Still a benefit not having hair on certain parts of my body.
I have a good amount of facial hair but nothing crazy.
As for side effects. I have not experienced any. I would definitely consider taking this or any drug for the rest of my life if needed.
I just hope that these drugs get FDA approval soon. It would be nice to see them get approved within the next year.
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I would be interested if it does not affect my ITP Low Platelets
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I have had Alopecia since I was 5..it IS devastating growing up with this..being teenage is hard enough but..all of my friends trying new hair styles and I had all these spots to cover up on my head. It would come and go..but always came. as a young adult- dating was not fun either. I tried many things over the years and all worked for a while. I am 52 and have had Universalis for over 10 years. I would still give anything to have my hair back. I would be in a case study for sure. You are the only one that can make the right choice- you know your body and your health
better than anyone, so consider all of the pros and cons and do what is best for you.
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Comment by Sarah Reade, MD on January 28, 2021 at 12:43pm
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I would if the side effect profile was good.
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I would want to know the ingredients in the study. I am open to it.
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