Comment

Comment by Pamela on January 28, 2021 at 9:03am

Yes.  I've been contacted a few times in the past.  However the trials offered were 50 to 100 miles away.

Comment by Suzanne on January 28, 2021 at 8:51am

Maybe 

Comment by Ally on January 28, 2021 at 7:06am

I did not realize there were any studies out there being done. That’s exciting!  I would love to have my hair back. Tough decision. If this had been offered when I was younger and single I would not have hesitated. I would have risked my life to have my hair again. I probably would do it now if I was living alone. 

Comment by Karen Grevious on January 28, 2021 at 2:31am

No way. Immunosuppressing means more than being more likely to get COVID. It opens you up for all kinds of opportunistic infections. Increased risk of blood cancers?! I've been without hair since 2007. Otherwise my health is amazing and I work in an ER, constantly exposed to all kinds of things. I'd rather have my health than my hair.

Comment by Mollygirl on January 28, 2021 at 2:00am

I would give it a try. 

Comment by Palacewags on January 28, 2021 at 1:38am

I would be interested. Especially for eyebrow treatment 

Comment by Jade on January 28, 2021 at 12:44am

I am just hopeful with new genome biotechnology like crispr, prime editing etc that they'll finally find a cure. Because alopecia is a genetic disease but the main difficulty is that it involves multiple genes, whereas technology as of right now is focused on monogenetic orders (one gene diseases like sickle cell). But eventually, once they solve for these monogenetic diseases, they should be able to figure out ours by targeting the right combination of genes and solve our disease at its root. 

Because right now what we have are pharmaceutical companies testing these potent immune altering drugs (jak inhibitors) that come with serious risks and they expect us to be on them for life for them to work. These drugs don't fix the problem but suppress or "inhibit" an aspect of our immune system, but its just not inhibiting the immune system that attacks the hair follicles, it inhibits systemically the whole body which is not good. 

We need to ask our doctors to advocate on our behalf so that the money goes toward finding a cure by looking at our genes/root cause of the disease, instead of allocating money toward immune altering drugs that puts us at risk for more problems or other diseases.  

Comment by ButterflyV on January 28, 2021 at 12:13am

Hi, 

I would like to know more and consider participating.

Comment by Cheryl, Co-founder on January 27, 2021 at 11:30pm

I would be afraid of the side-effect.  Known that there is no real cure for alopecia yet.  I would not want to end the study back at square one with the new side effects.  When I first lost my hair almost 30 years ago now, I tried Rogaine and every time I picked it up and read about "heart palpitations, it worried me.  To the point that I stopped and just decided I would let nature take its course one way or another.  I never really grew back the hair, but I did become ok without it.

Comment by Jim In Cali on January 27, 2021 at 11:23pm

I signed up going in 2 weeks. Check Pfizer Alopecia study.

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