i from spain so my english it not good, i would like keep in touch because our problem is similar..
the trusth is that any doctor knows the reason of this.....when they say the word ...stress...uff .....Iam completly sure that it is not the problem, i know there is something else.
well, i am trying anything....now i think that it could be something that i am eating what is causing this......so i ditch the free product like coca cola light and gluten
I just have read your post, and you are suffering the same problem than me....i got a lot of pain in my scalp and hair loss, in my page I have put that I have alopecia areata but the doctor say that I have effluvium telogen, but a really bad one.
i wanted have a biopsia too, but the doctor said that it is not necesary because it is a efluvium ...and the pain ......they said it is because there is inflamation in my scalp but my scalp looks perfectly fine and healthy and, I am having celesemine for the pain ...but i cant take that forever!! it has a bit of corticosteroid.....
Heey! Thank you for your sweet words! I always try to stay positive in every situation, it may sound cheese but it works! (Always look on the bright side of life)
The biggest mistake people ordinary do is to count all of the setbacks and tragedies that we encounter in life. I always count all of my blessings. Only the simplest thing in life - The fact that I can walk, talk and that I have a job. Those are some things we underestimate daily.
I know it can be hard at times, but please stay strong and know that it will get better with time. If you have any questions or anything. Don't be a stranger!
Love / Jen
just read what you said about doctors and i am tottaly in agreement, Its our bodies and we are interested in whats going on i believe if we are not asking for anything illegal then why cant they take another test sheesh like as if i love giving them my hard earned money lmao its like dont flatter yourself i didnt come in here for the fun of it.
Hiya Jools - ta for the pal add! Glad I could make you chuckle a bit.... hey, life's too short to be miserable for long!
Sorry you're having a tough time right now, but it's to be expected when you have a major loss and a change in your appearance. But it's always worth remembering that there's something "wrong" with everybody... even (supposed) gorgeous famous peeps!
(This doesn't apply to me, obviously. And probably not you either, really... :) )
I got Alopecia when I was 7 years old. I wore a wig until I was 13. I stopped because it annoyed me and I didn't feel like I could be myself in it because I was always scared it would come off. Being athletic wigs never helped me be as competitive as I wanted in sports. I happened to make some really awesome friends at the NAAF conference who helped me realize it was ok to be bald and love who you are so now I'm fortunately very comfortable with being bald.
I've only had scalp pain once when I grew like 2 patches of hair back on my head. I shaved them because they hurt and they never came back. I have totalis right now. What about you what is your story? No problem for the add :)
Hey Julie, yes, I have diffuse alopecia areata....it's the same thing as alopecia areata...except it's a diffused version. This made it difficult to diagnose. I went to a hair specialist doctor, Jerry Shapiro, here in New York. He's the one who diagnosed me. I also mentioned the burning sensation...he said that they are well aware of it and don't know what causes it. I don't know if my hair will grow back, it's on a downward spiral, but the burning has subsided considerably...don't know why. But I was where you are right now, and I'm sorry what you are going through cause I've been there....it's horrible!!!!! And no one understands, they think you are exaggerating. My mother always says...AND it pisses me off...that I will have to learn to live with it. I'm telling you, I was ready to jump off a cliff. It hurt so bad. I think it may be part of the whole autoimmune thing...I'm not sure. In my case, I think it was caused by a hormonal shift, but that's not true for everyone. Yes, I've been there, I too, have had ALLLLL the tests done...some more than once because I also felt like shit, but nothing showed up on tests. So, I'm just (barely) dealing with it. I don't know if any of that helps,
but I just wanted to let you know that I understand. BTW, don't let your doctors make you think that you are crazy and need to speak to a therapist...that's what they say when they don't have an answer to your problem.
Hi, Julie Ann, thank you for the friend request. I know from experience that losing one's hair is so difficult to go through. I'm so sorry to hear about the pain you are experiencing on top of this. My heart goes out to you as well as my prayers. You are beautiful, too. Stay strong :)
I am thinking about you...and hoping you can get through this stage. Changes are coming...within you, too. Change is hard...but sometimes we are surprised as to where change leads us.
Sorry! I didnt realize I had a request from you! :) I am doing "okay" I feel like I wanna crawl in a hole and hide sometimes, but then I realize how much worse it could be. How is your hair doing? I have the pain like you do and its enough to drive you CRAZY! Is yours shedding too, or is it just pain? You are SOOO beautiful and you are an inspiration to people that have this, so keep your head up! :)
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the trusth is that any doctor knows the reason of this.....when they say the word ...stress...uff .....Iam completly sure that it is not the problem, i know there is something else.
well, i am trying anything....now i think that it could be something that i am eating what is causing this......so i ditch the free product like coca cola light and gluten
i wanted have a biopsia too, but the doctor said that it is not necesary because it is a efluvium ...and the pain ......they said it is because there is inflamation in my scalp but my scalp looks perfectly fine and healthy and, I am having celesemine for the pain ...but i cant take that forever!! it has a bit of corticosteroid.....
by a
The biggest mistake people ordinary do is to count all of the setbacks and tragedies that we encounter in life. I always count all of my blessings. Only the simplest thing in life - The fact that I can walk, talk and that I have a job. Those are some things we underestimate daily.
I know it can be hard at times, but please stay strong and know that it will get better with time. If you have any questions or anything. Don't be a stranger!
Love / Jen
Sorry you're having a tough time right now, but it's to be expected when you have a major loss and a change in your appearance. But it's always worth remembering that there's something "wrong" with everybody... even (supposed) gorgeous famous peeps!
(This doesn't apply to me, obviously. And probably not you either, really... :) )
I've only had scalp pain once when I grew like 2 patches of hair back on my head. I shaved them because they hurt and they never came back. I have totalis right now. What about you what is your story? No problem for the add :)
but I just wanted to let you know that I understand. BTW, don't let your doctors make you think that you are crazy and need to speak to a therapist...that's what they say when they don't have an answer to your problem.
Devin
How are you today?
When I had areata my head used to hurt, too.
Now that I have universalis, I am fine!
LeslieAnn
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.