You have a wonderful looking family and Lane is a cutie, I see he likes to play football too. It's nice to meet you. There is a camp for children with alopeica and it starts in Aug. 7,8 and 9th in Pa. Im going to try to take Ray. I think this will be good for him, we don't no one around here who has AA. It would be something to think about. You can look it up at Childrens Alopecia Project (CAP) bestywoytovich@yahoo.com. Besty and her husband is over.
We went to a Boston Meet and greet last April and had a nice time. We missed the Boston one this year..We are not going to NAAF, we have never been to one of their events. check out the www.childrensalopeicaproject.org. They are holding their first kids conference in PA this summer. There event is geared towards the kids. It is their first one. Also, if you contact Betsy she will put you on their contact list and can even tell you if there are other kids in your area Lane's age with AA that are registered with them. They have profile on this board too..Cindy
Hi Brittany, Samantha has been doing squaric acid for the last year. We tried topical steriods with no avail. I took her to 3 doctors before finding a doctor willing to be more aggressive. Of course I would never subject Sam to anything she did not want to do or that we thought would not be safe to try. She does well tolerating the irritation and rash she gets from the treatments. They are part of the response she should have to the treatment. We apply it twice a week now. It took several months before seeing any results. Now, she has patches of hair coming in. Around March she lost her lashes and rest of her brows. Still no signs of them coming in yet. Alopeica really snuck up on us. We have no family history of it and all her blood work is normal, nor does she have any symptoms that are commonly associated with AA. She started wearing a wig a year ago and really likes it. I was hoping by her b-day next month she will be wig less, but I don't think so. It is hard to watch a young pretty girl lose her hair and have to go through this. I am fortunate she has a good spirit and sees the positive in everything. She is an old sole as many say to me. Is your son doing any treatments?
Hi Brittany, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
Hi Brittany and Lane, Welcome!! This board is great. My name is Cindy and my almost 7 yr old daughter Samantha has Alopecia. She is having regrowth right now with treatments. It has been just over a year since she lost her hair, but she deals with it exceptionally well. We have been upfront with her about Alopeica and she understands it all very well. How has your son been able to cope with his Alopecia? You have a beautiful family. Cindy
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has Lane lost all his hair or just some hair? How does he cope with it? HAve other members in your family AA?
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Hello and welcome. How are you and Lane doing today?
LeslieAnn
Roger.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.