My daughter who turned 6 in Aug, has alopecia. Her first experience was in Dec 2014. She lost over 60% of her hair, but a year later she had grown all of it back. This year 2 days before her birthday I noticed a new patch. A month now and everyday she looses hair...the alopecia this time is difference as it seems to be slower but I dont know what to expect!
Hi Jennifer - I am having a hard time as well with this site. My e-mail is patty916@optonline.net. Please contact me as soon as you get a chance. THanks, Patty
I just wanted to let you know about a product that is amazing. It's called XFusion Check it out. You can get it at hair salons and it's not very expensive and is way Fab.
www.xfusionhair/info
Hi...
Well, we are flying phoenix to see a pediatric dermatologist. We are going to start something called Squaric Acid Dibutylester. We tried all of the possibilities that new mexico has to offer. This is the treatment that Cindy's daughter uses. We have never gotten results from any treatment before.
I just signed up with the National Alopecia Registry at MD Anderson. They called me back and signed up my other twin because they said they are in great need of twins. I guess with twins they find out the answers better, especially if only one is effected. We now have to send some blood samples from both girls, but if they find something promising Della will be one of the first able to try it.
Hi Jen, yes, my twins are identical. The twins had Chicken Pox in February and we noticed a small bald spot on the back of Sam's head a few weeks later. The pediatrician is pretty confident that this triggered Sam's AA. My twins also have autism so Sam doesn't notice anything different. I can't wait to see the pediatric derm so he can give us an idea of what to expect. If we do any treatments, they will have to be holistic as we do not believe in the use of meds unless medically necessary. We were told to try Aloe Vera. Have you tried this? Michelle
thanks for the message jennifer! I would love to chat more, i don't know how you feel about leaving your email on my page? let me know! my son blake is currently just using an ointment that is usually used as an immune-supresent medicine. we rub it on his spots and then hair will usually regrow. that is all we use or have ever used on him. how about you? do you use anything on scott?
My name is Debbie and I have a son Blake who is 7 and has had alopecia since he was 1yr. old. He is currently regrowing almost all of his hair(he was completely bald for quite a few years) but has some bald spots in the back. I would love to chat w/ you more especially about the hair crayon you use...I've never heard of it! Take Care~Debbie
Hi Jennifer! If you ever want advice...just send me a message. I have been were Scott is. It's tough, but with support from a great mom like you....I know he will be fine!
Hi Jennifer and welcome to the site. Your boys are just beautiful. I have one son and he is already 19 years old. I hope you are made to feel as welcome as I was when I joined just a couple of weeks ago.
Hi Jennifer,
I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. I was going to suggest that you join the Parents of Children with Hairloss group, but I see that you already have ;).
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Jennifer - Mom of Scott's Comments
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Hi Jen,
My daughter who turned 6 in Aug, has alopecia. Her first experience was in Dec 2014. She lost over 60% of her hair, but a year later she had grown all of it back. This year 2 days before her birthday I noticed a new patch. A month now and everyday she looses hair...the alopecia this time is difference as it seems to be slower but I dont know what to expect!
PLease connect so that I have someone to talk to
I just wanted to let you know about a product that is amazing. It's called XFusion Check it out. You can get it at hair salons and it's not very expensive and is way Fab.
www.xfusionhair/info
Jeff
Well, we are flying phoenix to see a pediatric dermatologist. We are going to start something called Squaric Acid Dibutylester. We tried all of the possibilities that new mexico has to offer. This is the treatment that Cindy's daughter uses. We have never gotten results from any treatment before.
I just signed up with the National Alopecia Registry at MD Anderson. They called me back and signed up my other twin because they said they are in great need of twins. I guess with twins they find out the answers better, especially if only one is effected. We now have to send some blood samples from both girls, but if they find something promising Della will be one of the first able to try it.
My name is Debbie and I have a son Blake who is 7 and has had alopecia since he was 1yr. old. He is currently regrowing almost all of his hair(he was completely bald for quite a few years) but has some bald spots in the back. I would love to chat w/ you more especially about the hair crayon you use...I've never heard of it! Take Care~Debbie
No, I never did get an e0mail from you, can you resend it?
Angell
I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. I was going to suggest that you join the Parents of Children with Hairloss group, but I see that you already have ;).
Cheryl
co-founder
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.