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I am the mom of a beautifully talented 13 year old daughter that suffers from AT.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?

Hi Everyone!

Well, Maygen has about 15 - 20% of hair left on her head. She has been wearing her wigs daily now, unless at home and she wears her TEXAS LONG HORNS cap! HOOK"EM HORNS! She has her own page for you guys to visit now....just look up Maygen! She is doing well and seems to be in good cheer. She is actually excited about the new wigs. I am also excited for her. Maygen won the Wig giveaway from Marisa and Maygen has worn that wig over the entire holiday break! Thank you so much Marisa and please go to Maygen's page to see her pics with it. She is sending you a letter in the mail to thank you. She couldn't wait for me to get home before she opened it....she was very excited. Thank you again! I just want to thank everyone of you on Alopecia World. You all have made this a wonderful experience. Thank you all for your kindness and I know that without a doubt God has a special plan for each of you. May each of you have a FANTASTIC new year!

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Maygensmom's Blog

What now? Maygen's turning 18 in October

Posted on January 3, 2013 at 11:31pm 1 Comment

Today Maygen went to The Kids Hair Club in Dallas and basically let us know that next Christmas we will be paying $4000 for her hair systems. I had no idea it was so expensive. Maygen will also start college shortly after we start paying for the wigs. My husband and I want to provide Maygen a quality wig but also be able to pay for her college without going into financial ruin. Are there other wigs that are less expensive but up to the same level of quality?

Please share with me your experiences with the steroid pills....can't think of what they are called.

Posted on January 23, 2009 at 11:45am 6 Comments

Maygen started taking steroid pills that are suppose to surpress the immune system so that her hair will stop falling out and regrowth can occure. So far she has been on them for a week. She is still loosing hair. Hmmm....I do see regrowth, but it was there before she started the pills. She was using the steroid topical cream. I would just like to here the good, the bad, and ugly about these pills.

Kids Hair Club VS. Locks of Love

Posted on January 8, 2009 at 2:38pm 8 Comments

Can someone share with me their experiences with each of these programs.

Comment Wall (50 comments)

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At 7:12pm on May 26, 2009, myranda said…
hey i was just wondering when she lost her hair was it recently?
At 8:50am on February 14, 2009, brian kirchman said…
thank you thats very sweet lets hope :)
At 10:31pm on February 12, 2009, Olivia Rusk said…
Thanks for adding Olivia as a friend. I am her mom, Sandy and
as I look at your daughters photos, it reminds me so much of
how Olivia looked when she lost her hair the second time at age
9. However, Olivia's hair was blonde. If there is anything you
need from us, just let us know.
Sandy Rusk
At 9:47pm on February 12, 2009, Amanda said…
well i hope it starts working :) and i play pitcher :) i love it
At 9:37am on February 8, 2009, brian kirchman said…
thanks yea pretty much all i do now a days is mud break stuff on my trucks and fix them so i can mud some more lol. its fun. yea im pretty much over looking for a relationship but if i did find a girl who liked muddin and bald guys that would be awsome
At 1:36pm on February 1, 2009, Jenn said…
Thanks for your comments on my page. Your daughter is a beautiful girl and from her own page seems so positive and involved in all things a 13 year old girl should be. As a junior high teacher it warms my heart to see such a well adjusted, happy girl who when faced with unexpected challenges looks for the positive and makes a conscious effort to grow (hair, spiritually, emotionally). I am impressed with you both. God bless.

Bald Girls Rock,
At 5:05pm on January 27, 2009, Kimberly said…
I appreciate your sharing Maygen's story. It's a constant battle, & I'm trying to prepare myself for the long haul. It's nice to see Maygen so involved in activites & sports & surrounded by a good support group. We have been fortunate to find people are very compassionate & curious about what's going on more so that saying unkind words. I find sometimes kids say something and it just comes across unkind not understanding that it's the way it was said vs. what was said.
Thanks for the kind words about Kendall. We think she looks great w/ or w/o hair too. However, we do really want her to have hair...obviously! :)
Please keep me posted w/ results from the steroid pills. I wish y'all much success!
At 12:14am on January 27, 2009, James said…
Thanks for the birthday wishes!
Others' lives sound so interesting but more often than not they are just like our own. I've only been to Greece once and that was to visit family and register that property. It is an amazing place and i had fun but i also learned a lot as well. I had to actually think about it when you asked me what I like to do; and yet I didn't even mention some of the things I like gardening. I like vegetable gardening the most. There is something about tilling the ground and planting seedlings that I enjoy. I enjoy watering the plants and watching them grow. The fruit or vegetables that they produce are the icing on the cake because i enjoy nurturing the plants through the growth stage the best. I also like hiking. I like hiking through forests most of all: Especially deciduous forests in the autumn. At that time the silence of the forest is broken by the crunching of the leaves bineath my feet and the smell released by the decaying leaves is relaxing and therapeutic to me.
Remind your daughter that she is beautiful and she can do anything she wishes. The only thing stopping her is herself. And although I'm sure you would do anything to be able to take her condition away just don't forget that there is another child that needs just as much love and attention...your son. But it sounds like you try as best you can! God bless you for helping those in need.
At 7:38pm on January 26, 2009, Ronda Neuert said…
I've been @ 90% for almost a year now. I have had no regrowth. I believe by summer it will all be gone. With what little I have left, I have developed a ton of tiny spots. I just keep praying that it stays just on my head. Do ya'll go to the NAAF conference? I have never been, I really want to go this year to meet people who expereience this on a daily basis. Now that your daughter is a little older do you think stress plays any role in the hair loss? I was wondering because, I was really sick in December I ended up with Pnumonia. As I was getting better. The last spot of solid hair that grows filled with tiny spots. For me stressful events seem to help the hair loss along. Well God Bless! I look forward to your response :o)
At 6:29pm on January 24, 2009, Melani Molina said…
Pearland is about 300 miles from Dallas. We have friends and family in that area and it generally takes us about 4 1/2, 5hrs. to get there. Pearland is just south of Houston, so we are pretty far down here. Thanks for the compliment on my kids--I think they are pretty cute myself, but I'm the mama so.....................:)


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