I am the parent of a 21yr old girl with Alopecia Areata. My daughter's name is Ashton, she is a junior in college. My daughter has struggled with alopecia areata since she was about 4, but we have always managed to hide her spots with her hairstyle until late 2008 early 2009. She was a competitive cheerleader so we needed a hair solution that was extremely secure. Ashton uses the virtuesse hair system and has for many years and although it's not perfect it has allowed her to live as close to normal as possible.
Hi Tonya, my daughter is a competitIve cheerleader in Arizona. She is 12 and almost completely bald at this point. I got her a wig and the wig place is putting me in touch with someone who does hair bonding. I'm trying to find the best solution for her because she wants to make sure that she doesn't have issues at cheer. She just found out that she made a level 5 team and ow has this hair worry. Any advice would be appreciated. You can also call me if you like. It may be easier than typing it all out. My cell is 602-540-2890.
I have a 12 yo daughter with a type of ectodermal dysplasia causing very thin brittle hair. We are considering the Virtuesse system and have already had an initial meeting. I am wondering if you and your daughter are still happy with the system and if you have any thoughts. My daughter's hair is short but she has a good bit on the sides with the top being very thin. They are suggesting that we shave the top of her head and leave her natural hair on the sides to blend in. Having used the system, what are your thoughts about that? Does your daughter say it is hot or itchy? We are very nervous. Thanks for sharing your thoughts.
Long time since I've visited alopecia world, but wanted to update everyone on my daughter. She is doing amazing. We have been doing the virtuesse hair system since March and it has changed her life. Every 6 weeks she gets new hair and is now more confident in herself that she is having fun with them changing colors and lengths. She is able to do all the normal activities kids do over summer. I'll post more pics soon.
Hi Tanya, I was wondering how the system is working for your daughter? I had looked this system myself, but was afraid of if. How often does she get it changed, does it look natural? I need to do something soon.
I'm so sorry that you and Ashton are having such a horrible time. I fully understand what you mean about feeling helpless, it made me feel very guilty that I couldn't make her alopecia better. Hayley's now 21 and coping very well with alopecia , I hope that gives you some encouragement although I know it doesn't solve your current problems. Its so upsetting that these bullies think its ok to behave in the way that they do, by targetting vulnerable people. Rose Marie has some good advice and I hope that things improve for you both very soon. I'm glad that Ashton has the support of her cheer friends and of course yourself because understanding people can make all the difference even if they can't make difficulties disappear. Take care
Hi Tanya, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
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