kdeff
  • Female
  • Lebanon, TN
  • United States
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kdeff's Discussions

NAAF conference

Started this discussion. Last reply by Sarah Sproul Jun 20, 2013. 2 Replies

So who else is going to the NAAF conference in St. Louis? It's my first one and I'm pretty excited about it. I'm not taking my 3 year old since she's not old enough to participate in the camp yet,…Continue

Starting SADBE therapy

Started this discussion. Last reply by Karen Smith Feb 18, 2012. 1 Reply

My 2 year old was finally diagnosed with AA after a year of on-again off-again hair loss. Her Derm is going to try SADBE therapy. Has anyone had success? I have questions like do you wash hair with…Continue

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Relationship Status:
Married
About Me:
I am the mother of a fabulous 2 year old daughter who has had issues with her hair since she was 11 months old. I also have a 4 year old daughter with tons of hair! I have shed many, many tears over this situation because I don't want my baby to have to experience anything that is hurtful. We are trying some treatments that our dr recommends, but in the end as long as she's happy and healthy, we will all be fine :)
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (11 comments)

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At 3:05am on June 20, 2013, Sarah Sproul said…
Hey. Thanks for your response. I am actually from Franklin, TN. My parents and my brother still live around Nashville. I have actually used HPI a lot, however the previous owner sold it to someone else. I used to love HPI but I am not as impressed with the new ownership. I felt pressured into buying something I didn't like. They really wanted me to buy a wig because they mentioned that prices on hair would be going up. I might end up going back with them but I really want to look into other options since wigs are extremely expensive. I had some great dermatologists growing up in the Nashville area. I used Dr. Michael Smith who is associated with Vanderbilt and Dr. Binhlam in Brentwood, TN. They both always gave me options on trying to treat my alopecia, however I lost most of my hair and eyebrows when I started college.
At 1:05pm on June 6, 2013, Courtney Yanda said…

I will send you a message to your inbox here so my information isn't public:-) Look in your inbox!

At 12:20pm on June 6, 2013, Courtney Yanda said…

Kdeff,
My ,little one is 6 1/2 now...he started losing his hair just before age 2 and is now completely bald with not a hair on his body. He is happy, healthy, cute as can be and loving life. I know he will be fine but I can't possibly stop worrying...you know how it is:-)

I'm glad to see you are close by in Lebanon--we are in Nashville. I don't know if there is such a thing but I'd love to have an alopecia play group sometime. My little Luke has never met another child with alopecia and I know he would enjoy it.

Maybe we can meet up sometime! Good to know you are so close!

At 8:57am on May 22, 2013, terri said…
Hi
My daughter also lost her hair at age 2. She is now 10, bald, and doing great! Filled with confidence and feels beautiful, has lots of friends. Your daughter will be fine. I highly recommend you contact childrens alopecia project. They are having a camp this August in Michigan. Lots of fun (we will be there) and you and your husband will get the necessary support so you can help your daughter throughout her childhood. And they address sibling concerns too.
Terri
At 11:31pm on May 21, 2013, Dena said…

Your daughter is so cute. Thanks for the friend request.

At 3:54pm on May 18, 2012, Kim Karacz Caudill said…

Thanks for the add, your daughter is precious.

At 11:06am on March 5, 2012, Dean said…

Thanks Laura! I just ordered the book on Amazon. I'll let you know how it works out.

At 12:33pm on February 26, 2012, Cindy said…

How did you make out with the skin test?

At 10:08am on February 17, 2012, Dean said…

My daughter lost her hair around age 4 and it's been on again off again since. Right now she's in a period of shedding again. We used probiotics with a lot of success early but not so much now. We're adjusting the dosage to see if that helps. Other than that, we got wigs from Hair Club for Kids that got us through the worst periods and kept her spirits up. They are actually really nice and high quality - and free. Now that she's older, the wig thing is less attractive to her as she is now concerned about what other kids will say.

At 8:06am on February 16, 2012, Cindy said…

Hello and Welcome..Your daughter is adorable. I wanted to suggest you contact the Childrens Alopecia Project to get in their system and no cost. They do a kids camp every summer for a long weekend for the entire family. Support groups are popping up across the country. www.childrensalopeciaproject.org.

Please write if I can help in away. Cindy

 
 
 

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