Comment

Comment by Amilda on June 23, 2014 at 8:19am

Hi Nicola, thank you  for your point of view. ref; on line orders.. Rene de Paris & Jon Renau, what country are they making their  wigs? what iv'e seen, is USA or Canada & Newzealand, how about fitment?? are they affordable?? as I live on my pension. £1000,00 for a wig is a lot of money, you'r right there, they may be good quality and colour, but one will have to save up for that delight.

Thanks.. I will try the  net.link you have given me. I will let you know of any results . God bless you.....

amilda.

Comment by Amilda on June 23, 2014 at 8:05am

Hi KFlame, the thing with ordering on line,is the returns if not ok, a lot of hassle.

I go to the Q.E.Hospital Dermatology dept; NHS, and am allowed 2 acrylic wigs per year, I pay half-they pay half, which I think is quite good.  But am only allowed 1 human hair wig, with that they will pay some, 1 third...and my children help me with the rest,[ thank heavens] QE, only give 2  wig shops to choose from, whether Solihull had 3

shops to visit.  don't give up NHS hospitals, the money they pay does help. I seem to hear it depends on your Doctor and Hospital. thanks.. God bless you. Amilda. 

Comment by KFlame on June 22, 2014 at 3:10pm

I am a fan of Rene de Paris they seem to last a long time. I once went to one wig specialist who actually adapted a Rene wig as I have a near petite head and fitted so much better. (She cut it down and stitched it not sure I dare to do that myself) I guess it is about just finding what feels best.

Comment by Nicola on June 22, 2014 at 1:10pm

Amilda, my town that I live in is too small to support a good wig shop, so I order mine online.  I've had great success with Rene de Paris brand as well as Jon Renau.  The wig I'm sporting in the video is a Jon Renau.  I would also love a human hair wig but the cost is too prohibitive at the moment.  maybe try here:  http://www.internetwigs.com/jon-renau-wigs.html good luck!

Comment by andrea t on June 22, 2014 at 9:28am

The bottom line is always to find what's comfortable for you and do it. There are no right and decisions, only it seems wrong to impose some else's values on yourself. Hair loss is a multi-faceted social issue and finding your comfort level is complicated. It is helpful to not "dumb down" the complexities. It's important to understand and face all of your feelings so that you can come to terms with them and go forward being comfortable in your own skin.

Comment by KFlame on June 22, 2014 at 7:32am

Amilda I often have issues over finding the right wig and lack of good places to go in the Uk. I know can buy on line but I am fussy that I want it to he just right. I see lots of posts on here about freedom wigs but I simply don't have the money or the means to get to the Uk suppliers. I also not been to the NHS in a long time I just didn't see the point for the small money off they allow.

Comment by Amilda on June 22, 2014 at 6:37am

Hi, Margaret, you are quite correct, no one understands [except people with same] how difficult and emotionally 

scarring this can be.  I personally suffer with  'Linchen Planopilaris' scarring hair loss,which destroys the hair follicle replacing it with scarring.  At present, my scalp is very read and itchy [6 years now] with bright angry red spots-- not contagious the hospital assures me--but to go without a wig???? i would love too, but when some people have seen my scalp, ie hair dressers,they gasp and quickly wash their hands and utensils.,, or look most sorry for me. i don't want pity,just some understanding, especially from some male receptionist in the Hospital wig department, who are so condescending..it makes me sick and angry, as they speak from 'hear say' and not experience. I would very much love to find a wig shop that would fit me with a 'human hair wig'  and colour to suite me, that would make me happy and confident in wearing it.--in the UK only.[NOT Bromsgrove B'Ham.] Please God.---- sorry for my moans, nice to talk to sisters who understand. Thanks. xx Amilda.

Comment by Mark S. Hansen on June 21, 2014 at 5:25pm

I lost all hair when I was in junor high school. My parents bought me a quailty wig when I was 15. I did not forsee the future. But I wore one, bought a new one about every 3 yrs, for 35+ yrs. I finally took it off 10 years ago. The problem for me is that in terms of a social life it was suppoed to help me or give me the courage to approach more women in high school work college etc. Well it did or I did the oppisite. Instead of asking women out or dance or to have coffee etc, I thought to myself, what if I do ask someone out and at some point I have to tell her that I wear a wig and I'm bald, what will she say?  I figured time and time again that any woman would freek out of take off or something like that. I didnt have my first date, blind date, until I was 19. It was a disaster. I lost my virginity at age 48 to a woman I met over the internet. between those years I went out to night clubs with friends and went to college but basically became a wallfower.On rare occassions when I did ask a woman or two out and she tuned me down I always figured it was bec I wore a wig, even though I never really knew if she could even tell that I wore one. But I could not hide the fact that I had no eyebrows or eye lashes. But thats it. To this day I have never had girlfriend or relationship in my whole life. Im S, age 58, and comp alone. Wig or not the worst symtom of this condition is public ignorance. If you wear a wig, tell the person, its better than going through life like me, stone alone. Mark Hansen MIlw WI.

Comment by hoofpick on June 21, 2014 at 1:32pm

PS. Nicola, If I looked that great without my wig, I would go without a wig, you are beautiful!!!!   

Comment by hoofpick on June 21, 2014 at 1:24pm

I am newly diagnosed, when the hairdresser cut most of what was left of my hair off, it was not much, just a few straggly long pieces, I had in the front of my head and the back of my head, it looked hideous, but it was my hair and I wanted to hold on to it. So when the hairdresser cut it I was shocked and sad.   I wore a baseball cap all of the time.  But when I got my real hair wig, a wig that looks pretty close to my color and cut.  They cut it all off, not bald but very, very short.  I had been coloring my hair for years....it is all gray now, so with the little growth that is coming back, only the front bangs growing, most of the rest is not growing, not falling out, but not growing it is completely gray.   So I have light gray with bald spots on my scalp.

 To the wear the wig or not question, I have worn the wig or wigs, I have three, I wear the wigs out away from home.   At home I go without a wig or wear a cap when working outside.   I wear a cap around people other than my close family members around home.   I am more comfortable with just a ball cap to tell the complete truth, I find the wigs uncomfortable, itchy and hot.   Its summer also, but I also feel pretty self- concious in the wigs, I get really paraniod if people stare at it too long, I wonder if they think it looks weird, do they know its a wig or are my gray bangs  sticking out, or its crooked etc.......I’m thankful on one hand for the wig, because it makes me look more normal, I am not comfortable talking about myself, so it evades the questions or looks I know I would get without the wig.   I ride horses when I ride I wear my ball cap with the hair.   I have been braiding the hair to keep it cool and off my neck.   I am new to this disease, I am a shy person, but I also know what I like and don’t like.   I feel as time goes on, if it grows some more, it looks man short, I wish I was a Hallie Berry type that could pull it off, but I’m not, so if it grows more, I will probably get it colored again, to my previous haircolor before going gray.   And stop wearing the wig, even if it is not the long hair I had.  My hair is very slow growing if at all, I am grateful its not all falling out again, but I am also with some pretty large bald spots on top and sides.  

I think its a matter of choice for us, either you are very comfortable with your self and you want to go without the wigs or you are more comfortable with the wig, its YOUR choice.   There is not a rule that says you have to do either.   Its what feels good to you, its what you want to do, what others do is not your concern.   I have to say, I don’t get as hot as I used too, with my long, very thick hair.   I will probably never grow it long again.  If I’m that fortunate to ever get it all back.  The wigs are nice because you can take them off and on.   Change styles, it was fun looking at the wig shop at all the different colors and styles, take it on and off.   Without cutting and deciding you liked or did not like the look on you, waiting for it to grow back.   I say to myself it is not a disease that keeps me from still going and doing what I love to do...................

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