Comment by Mark S. Hansen on June 21, 2014 at 5:25pm

I lost all hair when I was in junor high school. My parents bought me a quailty wig when I was 15. I did not forsee the future. But I wore one, bought a new one about every 3 yrs, for 35+ yrs. I finally took it off 10 years ago. The problem for me is that in terms of a social life it was suppoed to help me or give me the courage to approach more women in high school work college etc. Well it did or I did the oppisite. Instead of asking women out or dance or to have coffee etc, I thought to myself, what if I do ask someone out and at some point I have to tell her that I wear a wig and I'm bald, what will she say?  I figured time and time again that any woman would freek out of take off or something like that. I didnt have my first date, blind date, until I was 19. It was a disaster. I lost my virginity at age 48 to a woman I met over the internet. between those years I went out to night clubs with friends and went to college but basically became a wallfower.On rare occassions when I did ask a woman or two out and she tuned me down I always figured it was bec I wore a wig, even though I never really knew if she could even tell that I wore one. But I could not hide the fact that I had no eyebrows or eye lashes. But thats it. To this day I have never had girlfriend or relationship in my whole life. Im S, age 58, and comp alone. Wig or not the worst symtom of this condition is public ignorance. If you wear a wig, tell the person, its better than going through life like me, stone alone. Mark Hansen MIlw WI.

Comment by Amilda on June 22, 2014 at 6:37am

Hi, Margaret, you are quite correct, no one understands [except people with same] how difficult and emotionally 

scarring this can be.  I personally suffer with  'Linchen Planopilaris' scarring hair loss,which destroys the hair follicle replacing it with scarring.  At present, my scalp is very read and itchy [6 years now] with bright angry red spots-- not contagious the hospital assures me--but to go without a wig???? i would love too, but when some people have seen my scalp, ie hair dressers,they gasp and quickly wash their hands and utensils.,, or look most sorry for me. i don't want pity,just some understanding, especially from some male receptionist in the Hospital wig department, who are so condescending..it makes me sick and angry, as they speak from 'hear say' and not experience. I would very much love to find a wig shop that would fit me with a 'human hair wig'  and colour to suite me, that would make me happy and confident in wearing it.--in the UK only.[NOT Bromsgrove B'Ham.] Please God.---- sorry for my moans, nice to talk to sisters who understand. Thanks. xx Amilda.

Comment by KFlame on June 22, 2014 at 7:32am

Amilda I often have issues over finding the right wig and lack of good places to go in the Uk. I know can buy on line but I am fussy that I want it to he just right. I see lots of posts on here about freedom wigs but I simply don't have the money or the means to get to the Uk suppliers. I also not been to the NHS in a long time I just didn't see the point for the small money off they allow.

Comment by andrea t on June 22, 2014 at 9:28am

The bottom line is always to find what's comfortable for you and do it. There are no right and decisions, only it seems wrong to impose some else's values on yourself. Hair loss is a multi-faceted social issue and finding your comfort level is complicated. It is helpful to not "dumb down" the complexities. It's important to understand and face all of your feelings so that you can come to terms with them and go forward being comfortable in your own skin.

Comment by Nicola on June 22, 2014 at 1:10pm

Amilda, my town that I live in is too small to support a good wig shop, so I order mine online.  I've had great success with Rene de Paris brand as well as Jon Renau.  The wig I'm sporting in the video is a Jon Renau.  I would also love a human hair wig but the cost is too prohibitive at the moment.  maybe try here:  http://www.internetwigs.com/jon-renau-wigs.html good luck!

Comment by KFlame on June 22, 2014 at 3:10pm

I am a fan of Rene de Paris they seem to last a long time. I once went to one wig specialist who actually adapted a Rene wig as I have a near petite head and fitted so much better. (She cut it down and stitched it not sure I dare to do that myself) I guess it is about just finding what feels best.

Comment by Amilda on June 23, 2014 at 8:05am

Hi KFlame, the thing with ordering on line,is the returns if not ok, a lot of hassle.

I go to the Q.E.Hospital Dermatology dept; NHS, and am allowed 2 acrylic wigs per year, I pay half-they pay half, which I think is quite good.  But am only allowed 1 human hair wig, with that they will pay some, 1 third...and my children help me with the rest,[ thank heavens] QE, only give 2  wig shops to choose from, whether Solihull had 3

shops to visit.  don't give up NHS hospitals, the money they pay does help. I seem to hear it depends on your Doctor and Hospital. thanks.. God bless you. Amilda. 

Comment by Amilda on June 23, 2014 at 8:19am

Hi Nicola, thank you  for your point of view. ref; on line orders.. Rene de Paris & Jon Renau, what country are they making their  wigs? what iv'e seen, is USA or Canada & Newzealand, how about fitment?? are they affordable?? as I live on my pension. £1000,00 for a wig is a lot of money, you'r right there, they may be good quality and colour, but one will have to save up for that delight.

Thanks.. I will try the  net.link you have given me. I will let you know of any results . God bless you.....

amilda.

Comment by KFlame on June 23, 2014 at 8:25am

I worked out pay so much of prescription then saved only a small amount for the effort to go hospital time of work I just couldn't be bothered
My last hospital didn't help as they said would only give me a prescription IF I gave a blood test which I hate needles and came out negative id rather not bother :) but to be fair I have moved across country so you never know maybe better here. I didn't think about postcode lottery before I assumed was same everywhere

Comment by Amilda on June 23, 2014 at 11:23am

That is so true,it does depend what part of the country even county you live in, ref medication and wigs.It is good to see Alopecia UK, making a stand, it is time that Society and the Media, and most of all Doctors, GPs, and hospitals and NHS understood and accepted and respected what actually Alopecia is and how detrimental it is to the suffering Young, boys and girls, men and women young and old.

Lobby your Doctor, he/she is the one to help, they have more more power to help, as they have to Refer  you to a Hospital to the Dermatology department, and then they give a prescription for a wig and ongoing treatment if required. It won't hurt to look into it for your own peace of mind.. Good luck--....

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