Julie R
  • Female
  • West Orange, NJ
  • United States
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Relationship Status:
Single
About Me:
I'm a 27yo female, Filipina-American. I was diagnosed with alopecia areata in Feb. 2010 and it has been progressing more quickly than my dermatologist expected. I've been very upset about it, and have recently purchased a full wig. I've tried cortisone injections every month, Rogaine/minoxidil, and Olux (cortisone foam). The injections helped a little bit, but I'm still losing hair. My dermatologist has prescribed oral prednisone and it really helped for the past couple of months. My hair started growing back! But on 2/19/11, I think I may have discovered a new small spot :(
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Julie R's Blog

Not again...please, not again

Posted on February 20, 2011 at 9:30pm 3 Comments

Things have been going so well. All the hair has grown back in my bald spots over the past few months with the help of cortisone injections and a tapered oral prednisone treatment. I'm all the way down to 5mg prednisone every other day. I have a derm appointment on Friday and I really thought it would be my last for a long time.



But yesterday, I looked at one of my former bald spots, just to check out the regrowth. . . and I'm pretty sure I've discovered a new spot :.(. I can't… Continue

I wish they could understand

Posted on August 19, 2010 at 10:09pm 13 Comments

I just got off the phone with my mom and I'm in tears. I'm feeling bloated and weak and tired, possibly due to my oral prednisone treatment. I'm scared and sad. She just kept telling me that I should distract myself and not think about my hair. I told her it's hard not to think about it every day when I look into the mirror. It's hard not to think about it when I run my fingers through the hair I have left and feel the bald spots. I told her that I'm thinking it's very probable that I will… Continue

Comment Wall (17 comments)

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At 11:31pm on April 26, 2011, JeffreySF said…
Hi Julie,
Stopped in to say hello!
Jeffrey
At 9:27pm on October 18, 2010, Heather L said…
HAPPY BIRTHDAY JULIE!!
Hope it was a wonderful day! :)

Heather
At 12:07pm on October 10, 2010, Jocelyn said…
Hey Chica! How are you?
At 10:57am on September 29, 2010, Trish said…
Thank you so much for being there for me as I am for you Julie..I have read some of your postings and understand that it has been a long journey..I am too going through alot right now and trying to stay positive in hopes that some of this will resolve..The most important thing is to stay strong and focused for me to finish school, but it is hard...xoxo
At 12:38pm on September 28, 2010, charlotte said…
Hi Julie, You know what, I feel the same way.By the way were on the same age and I'm also a Filipina. I don't know if its a good thing, because of course I don't want anyone to undergo the same suffering and hardship that I have encounter. But you don't have to worry, always remember you are not alone... we are here for you!.And I'm still looking for someone in our country who has the same condition as I am.But sad to say I haven't found anyone yet.Good thing we have this site, where we can ask for some advice and for us not to feel that we are not alone.By the way I just turned 26 this month and I was diagnosed with alopecia areata when I was 10 yrs. old. So it was really painful on my behalf because I just keep it to myself. But I'm still proud of my self because I overcome all of it. Even if it affect my self confidence and self-esteem I can say proudly to anyone that I have achieve something unlike others who don't have AU but didn't achieve anything. And by the way I undergo I think anything that you can think off about medication and years had pass I have some improvements, my hair starts to grow again. And it was the happiest time of my life . But I didn't know that it will happen again. Because after 7 years I think, it starts all over again.From Alopecia Areata now I have Alopecia Universalis. I was really mad and sad. I said oh N0!!! NOT AGAIN PLEAAASSEE! I really pity myself, I cry most of the time because it was more complicated now rather than back then. It is more painful physically, mentally and socially but I just stay strong. And that is my only advice that I can give you. TO BE STRONG!!! I know we can do it... if they can I'm sure we can do it also. Even though I still have doubts with myself, I still continue to live my life for my family. Because I still want to achieve more. Hope to hear from you soon! Godbless :)
At 9:46am on September 11, 2010, Jocelyn said…
Hey Julie!

Just checkin in to see how you are doing .. also I don't know if it is too much of a shlep but there will be an Alopecia support meeting this Monday night at 7:30. I am posting the info in the Alopecian in NYC group if you can make it. It's the second monday of every month.

Speak to you soon
At 1:51am on September 11, 2010, kaitlin lavin said…
Oh wow, yes River Edge is extremely close! Aww, thanks for that.. Soo sweet! I'm glad my pictures are inspirational.. Definitely worth it (:
At 10:19pm on August 19, 2010, MiNAH said…
You should go to Jean Phillipe for a photo shoot in NEW YORK. He will make you see your beauty. Check him out on facebook. He will tell you to shave it off, cause you are adorable.
At 10:16pm on August 19, 2010, MiNAH said…
Shave it all off and show your beauty!
At 12:13pm on August 17, 2010, Gabriela Gonzalez said…
Hey! I am doing fine and you? I have been traveling around a bit this summer and seeing family and friends so that puts me in a good mood! How is everything going with the aa? is the prescription working?

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