May
  • 39, Female
  • kansas city
  • United States
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Started Nov 3, 2008 0 Replies

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One day at a time.....

Profile Information

Relationship Status:
In a Relationship
About Me:
When I was three I lost ALL my hair...but my parents didnt associate the hair loss with alopecia, they thought I had injested something, neverless my hair grew back. Then In June 2008 I found a bald spot, I went to the doctor and I was told I have AA, it was quite a shock because I felt something was wrong with me, i decided to keep my chin up and get some treatment, not but a month later I found out I was expecting, I thought again it was an answer to my prayers...i would grow my hair back fast because of the baby....i was wrong. I am loosing more and more everyday...and its hard to be confident when you hate your hair.

**UPDATE 02/15/10 **
My hair has begun growing back...quite a crazy thing, I am still always expecting it to turn and start falling out again. I am thankful. On a sad note I have noticed within the past couple weeks my 5 year old daughter is showing signs of having this condition as well. We are waiting on the call from the specialist so we can move foward with treatment. She is such a trooper....the first thing she said to me when we left the doctors office was " I cant wait to grow my hair back so I can share it with the kids who are sick and dont have hair" - We have never cut her hair, and until a few weeks ago it was long, curly and thick. We have talked about donating some to Locks of love when it got long enough...she has been so excited to do it....
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes
Your Website (Leave blank if you don't have one):
http://www.myspace.com/onebeautifulstarr

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May's Blog

A waddle to the finish line!!!

Posted on April 12, 2009 at 11:03pm 1 Comment

Just a few more weeks to go!! Baby is almost here, and I couldnt be more excited, and more scared at the same time. You would think that childbirth wouldnt be so scary the second time around...but it is. I am excited to be not prego any more...dont get me wrong I love the whole baby thing, but after 9months, IM DONE!! lol. It sucks that I found out about my alopecia when I first found out I was pregnant. It was a really big stress for the first few months......but since december, i havent… Continue

WOW

Posted on December 6, 2008 at 1:34pm 1 Comment

I usually blog about my hair, but today there are other things on my mind that I would like to share....both heartwarming and exiting also a bit sad,

I miss my momma, six years ago today she passed away suddenly. At the time I was 17, my older sister 19, and two younger brothers, 10 & 11. It wasnt a car crash or a murder, It was a illness no one was aware of, bacterial endocraditis (i think i spelled that right) She had an infection inside her heart that created a small hole in her… Continue

no title

Posted on November 14, 2008 at 1:47pm 2 Comments

I have been thinking since I went to my last doctor check up, About making an apointment with a dermatologist..... Im on the fence.... and i am somewhat afraid of the result being worthless. Being pregnant kinda stops all medicine and treatment for most everything. Wont it be the same for alopecia? And for some reason I keep thinking that maybe i will just grow it back.....



then yesterday i noticed something....



all my spots are on the left side of my head....pretty muchs… Continue

Just another day

Posted on November 8, 2008 at 8:42pm 0 Comments

I like the cold weather.....I can wear my hair down and throw a hat on....not worry about the wind blowing my hair so my spots will show... I went to my doc yesterday...I told her my hair was still coming out and asked if she knew anything that can be taken while pregnant....i was referred to a dermatologist. I almost dont see the point of going... more blood work more test, will it really help or is it just a waste of my time?

uugh

on a happy note.... WE GOT A PUPPY!!! he is sooo… Continue

Sigh

Posted on November 3, 2008 at 4:57pm 5 Comments

I am getting so fed up with my head....and I feel selfish because I havent even lost all of my hair yet. The spots just keep getting bigger, and the hair keeps coming out. I am getting sick of wearing it one way to hide the baldness, but its so hard to just throw your hair the way you want and screw the spots, but then people look and ask and make jokes.....or tell you what you should do to fix it. "dont be so stressed" is what i hear most often....I AM NOT STRESSED!! Its hard to explain… Continue

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At 12:09am on January 14, 2009, Cheryl, Co-founder said…
Hey May! Thanks for the birthday wishes! I feel like I am in the garden on your page! nice!
At 10:30pm on January 10, 2009, Shana and Taylor said…
do you have a child?

I saw a little girl so.....

Taylor
At 10:30pm on December 1, 2008, Craig S said…
Hi May- I am not a girl- but felt that you should see your derm for at least an opinion. i have read alot about B12, B6 and Zinc deficiency in AA cases. Adrenal levels drop as a result and cortisol gets the immune response activated- stress triggers repeated bouts that don't resolve if you are still mineral depleted..seems reasonable to speak to a Naturopathic Doctor or someone willing to do some tests.

Dermatologists stick to the Kenalog shots, oral prednisone and topical treatments like Rogaine to stimulate follicles- it woks, but in my case- temporaory, then it gets worse.

I am trying the holistic route, prior to shaving the mess off!

Cheers!
At 11:56pm on November 10, 2008, Carissa said…
Yes, they're mine! And thanks a whole lot, by the way! I really do want to be a photographer, I just have to figure out how to do it! I'm really glad you liked them, you have no idea how happy that makes me! I thought it was just my friends being nice to me, but I'm glad other people look at my pictures and like them! Thanks!
At 4:50pm on November 10, 2008, Lia said…
thanks so much for the warm welcome! yes if there's one thing this disease forces us to be, it's strong. i was just diagnosed last month so i'm not exactly there yet haha but for now my trick is to just focus really hard on everything else and try not to obsess over my hair too much. the first few weeks i couldnt stop looking at my bald patch - it was almost surreal. but now... SOMETIMES i forget it's even there - yay! anyway you and your family are beautiful!

take care,
<3 lia
At 11:33am on November 9, 2008, Jessica said…
Hey May,

Yeah i know most of the other people i know their hair grew back during pregnancy so strange. I never had and hair problems in my life until my 3rd pregnancy with my little boy. Do you have any other Auto Immune Diseases? I have Hashimoto's Disease my doc told me that when pregnant with a boy it's harder on your body when you have Hashimoto.
But please don't give your hair another thought your beautiful with and I'm sure without hair. I've also heard that often your hair will return. Mine did but it's falling out again Oh well I just got a new wig and I get a ton of comments on how pretty my hair is even better then my own.

keep in touch

jessica
At 9:05pm on November 8, 2008, Lori M said…
Hey! Ohhhhh I know where you are coming from..... My derm appointment is Dec 10th which is a staggering 7 months from when I was diagnosed.....When I was diagnosed I just had a little patch at the bottom of my head on the left side at the back. No my head looks like yours. The back is identical to yours. The side is about the size of a grapefruit the bald spot..... I too am sooooooooo frsutrated. What is the point indeed.....I am on a mad dash to get a wig (have already bought 4 which I hate)........It is sooooo awful...Right now this one wig shop is giving me the run around. I had asked if they carry Rene of Paris wigs and she said flat out no. I asked if there were any that would be like the ones I would like. Get this she told me to email her the pictures and she would see rather than booking an appointment. I had been in to them in May and tried a bunch of wigs and didn't like them. It seems that bringing in wigs for people to try on is an inconvenience to them.. Anyways I sent the email and have waited a week. I even called twice. Today I called and asked if the owner was blowing me off and that I wasn't too pleased. Still no phone call. Monday I will ring their necks. If this doesnt' work out then I have to go out of town to get a wig.... I am scared to order online....

Anyways wanted you to know I share your struggles and I am sure I will share your triumphs....By the way congrats on PUPPY!!! Animals are just so wonderful for perking up your moods unless they are my cats who are constantly getting into everything! LOL
At 5:22pm on November 3, 2008, LeslieAnn Butler said…
Hi May,
I know how hard it can be. I have had alopecia for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. Check it out on my page -- and let me know how else I can help.
LeslieAnn
At 1:50pm on November 3, 2008, Cheryl, Co-founder said…
Hi May, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 7:02pm on November 2, 2008, Cherylnz said…
Hi May,
Welcome to Alopecia World

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