Top Ten Things i Love / Hate about Alopecia

Love!
1. Only taking 5 minutes to get ready from being asleep and still looking good.
2. Not having to shave my face.
3. Not having to shave other things.
4. Plucking stray fuzz is relaxing.
5. Being able to kiss WITHOUT irritating your partner's lips with stubble.
6. Those moments when you can tell someone knows that something isn't right but they can't figure out what it is and they DONT say anything about it.
7. Looking the same Every day.
8. Having smoother skin than most women.
9. Being able to shower in 2 minutes or less and actually being clean
10. Having a wonderful community of great people to share my silly list with.

Hate!
1. Sweat running straight into my eyes because I have no eye brows which are otherwise usless to me!
2. The uncertainty of regrowth.
3. Looking the same every day.
4. Those moments when you can tell that someone knows that something isn't right about you and they DO say something.
5. Not being able to effectivly manage the look of "intruige" due to the ineffectively invisible eye brow raise.
6. Not being able to feel wind... or spiders on my skin. (seriously it's creepy when you see a spider crawling on you and you don't know how long it's been there)
7. People thinking you have cancer.
8. The days when every bath or shower yeilded a cornicopia of loose hair, or when even sitting on a chair left a treasure trove of DNA leaving strands. (not recomended for AA people to commit murders, not with the CSI team hanging around)
9. Worrying if your hair is covering your bald spots constantly.
10. Partial Eye Brows.. enough said.

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Replies to This Discussion

Permalink Reply by Dominique on March 27, 2008 at 8:43am
The list is great - the looking the same every day is great for being lazy - but had led to me buying a wig finally.

rings so true.
Permalink Reply by JimB on March 27, 2008 at 6:37pm
Comment ......

Not being blamed if the sink is backing up because hair is found in it ......
Permalink Reply by John on April 25, 2008 at 3:45pm
Love!!!

1. Drying off from the shower in 30 seconds.
2. Having people bless me in public...
3. People telling me to hang on and that they survived...I feel I bring them a sense of hope and good will.
4. Not having to shave everyday...wooo hooo...
5. Being able to stand out of a crowd...people seem to remember me...
6. The fact that I am loved by family and friends no matter what!
7. When I got out of a speeding ticket after the officer thought I was sick...
8. Not having to fix a fro of hair all the time...I had very curl hair...
9. It has kept me humble
10. It gave me a lot of confidence

Hate

1. I passed it down to my daughter:(
2. I get stereotyped
3. People act like hair is a characteristic of who you are as a person
4. Sweat getting in my eyes during exercise
5. Getting things in my eyes because of no eyelashes
6. Being compared to the movie character Powder or Dr. Evil
7. Having to shave odd patches of hair...I would just love all of it gone...
8. People seem to keep a distance if they think you are sick
9. How easily I get sunburned....ouch..ouch
10. Never being able to change a hair style ot beard, mustache....would be fun every once and awhile
11. Knowing the hair in your food is not yours...barf
Permalink Reply by Cheryl, Co-founder on April 25, 2008 at 4:02pm
John, very nice additions to the list.

I never thought about # 3 like that, but nice.
3. People telling me to hang on and that they survived...I feel I bring them a sense of hope and good will.

Funny how you can smile and laugh at the loves and at the same time sigh with the hates.

Thanks for sharing,

Cheryl
Permalink Reply by kastababy on April 27, 2008 at 12:47pm
Ultimate love now that football season is getting ready to start:

More space to paint your face/head/body in your favorite team's colors!!

(For me, it's going to be one side orange and white for the University of TN and one side black and gold for Vanderbilt on Saturdays, and purple and gold all over on Sundays for the Minnesota Vikings!!!)

My whole head is a canvas, and I'm embracing it baby!!!
Permalink Reply by JeffreySF on April 29, 2008 at 3:28pm
Great List Eric
Permalink Reply by Carmella on May 2, 2008 at 10:11pm
LOVE
1. Never having to shave ANYTHING!
2. Saving water with the reduced need to shower.
3. DMV photos (next I'm going with the beehive wig)
4. Not waking myself up pulling my own hair
5. Instant dismisal of being the one who got hair in the meal.
6. Avoiding catty hairdresser gossip
7. Seeing the fissures in my head when I get a migrane
8. Saving money on products
9. Not needing an eyelash curler
10. Buying cigarettes when people obviously think I have cancer

HATE
1. Getting shit in my eyes so easily
2. Always being COLD
3. Spending money on sunscreen
4. People who ask me if I'm a skin head
5. Being tired and sore (stupid inflammitory leukocytes)
6. Waiting to see what comes up with my kids
7. When the dog wakes me up by licking my head
8. Not being able to get lost in a crowd
9. Stupid people who try to tell me I just don't get enough protein
10. My friends and family taking it harder than I do.
Permalink Reply by Erdal on May 5, 2008 at 2:10pm
Nice List Eric
The column with the sweat straight into my eyes ohh that esspecially
Permalink Reply by Tony on June 16, 2008 at 12:05pm
OK, I'll admit, first time I read this a few months back I didn't get most of it. Then again, I had most of my hair and almost all of my eyebrows. Now I get it, especially the "Partial Eye Brows" on the "Hate!" list. My personal list would include "Head rubs" on the "Love!" list. Thanks for the great list and the laughs Eric!
Permalink Reply by VanessaVandalism on July 2, 2008 at 2:52am
omg XD thats kewl.
not feeling wind would be awesome!
XD i only have alopecia areata, not alopecia universalis [i probably got those wrong XD]
but i want to lose ALL my hair because it sounds kewl!
and when i get up i just wanna put my hair on and not worry about straightening and other stuff.
Permalink Reply by Zoey on August 4, 2008 at 1:23am
great list..... You rock!!
Permalink Reply by Georgie on August 27, 2008 at 12:03am
I only have AA but a personal "hate" would be:

Finding a hair (from my head) in my bra or on my back under my shirt. It is so irritating. The other day I was in the car and I couldn't stand it any longer...I had to look down the front of my shirt and fish a hair out of my bra while sitting at a red light. How do the hairs on my head always fall in there? I don't have a large rack! *sigh*

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