Alopecia World
Where acceptance is all there is!
Alopecia Hair Loss vs. Cancer Hair loss
When I called the insurance company a while ago I had asked if they'd cover a cranial prosthetsis for a medical condition, and they asked what it is, I said alopecia universalis. All she said back to me was, Alopecia? Okay, not cancer. I felt like I was insulted because I have alopecia. Because I'm bald just because I lost my hair. I just don't understand it is all and I can't wrap my mind around any of this either.
Replies to This Discussion
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Permalink Reply by Alo-mom on
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Hello Sierra, I am still working on finding you a wig that meets your needs. You sent me pictures of a few weeks ago. I will keep working on this. ALOMOM
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Permalink Reply by Return_life on
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Hi Sierra actually u nailed it in your post.
Alopecia community including health care practionners, patients, insurance... is one of the worst. emotionally it is devastating but it looks like nobody cares. I understand your point 100%. you know when someone is a cancer survivor you see it everywhere like it is something to be proud. but alopecia is the opposite. most of us hide. when one alopecian gets his hair back he disappear from the community. this site is THE only good site. and even in this one most of the people once they get their hair back you don't see them anymore!
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Permalink Reply by Camryn on
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You're completely right. Hair loss is hair loss. There should be no differentiation. Whether someone has cancer or alopecia, they have lost their hair through no fault of their own and may need financial assistance for a wig. In part I think cancer patients get more assistance because the lifetime risk of developing cancer is so much greater than alopecia. Cancer is a very high profile disease but that doesn't mean folks like the insurance company you dealt with couldn't try to show some sensitivity to those of us losing hair due to other conditions.
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Just to add, I stumbled across the British Association of Dermatologists website only a few minutes ago and one page mentions if you have alopecia you can get a wig on the National Health system on a doctor's prescription. So some places are better at helping than others.
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Your post is right on! Of course, I feel sympathetic towards people with cancer. But their hair loss issue is totally different. The hair grows back after cancer treatment. Our hair loss is much more unpredictable and could even be permanent. The reason people are more focused on the hair loss issue with cancer patients is because the cancer patients have a much more vocal and larger lobby. They kick and scream until they get want they want. Good for them! However, our hair loss issues are the result of an auto immune disease; therefore, wigs SHOULD be covered. How can insurance companies provide wigs for one disease and not another? The answer is: THEY KNOW THEY CAN GET AWAY WITH IT!!
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I know right. To be honest alopecia is incredibly underrated. I understand that there are worst problems in the world and all, but alopecia is a problem too. I don't have hair or eyebrows or eyelashes. Something that many people have. It's hard sometimes. So I completely agree with you. I defiantly think that alopecia should be something that's more known because it's hard too.
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