At what point did you decide to stop treatment for alopecia areata?

When my hair first started falling out I had no clue what was going on, it all happened so fast (hair one month, bald the next) that when I started going to a dermatologist I started doing everything she told me. After speaking to a specialist and personal research I decided that there truly is no point in putting my body through all those drugs. What I had learned is that if your body is going to correct itself it will do that regardless of what treatment method you choose. The fact is that there is no cure and if there was really a treatment that worked for this then there would not be women on this website who have had it there entire lives! My hair did begin to grow back when I was on monthly high doses of prednisone however it fell out just as fast as I stopped. I still can't kick the idea that maybe there's something else wrong with me that can be corrected and let me have my hair back. I know I can't be the only one, I'm still new at this, I'd like to hear about when you decided "it is what it is" and "whatever is going to happen is going to happen".

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Permalink Reply by Sharion on February 16, 2015 at 2:58am
In my 37 years of alopecia I have tried everything from creams ,shampoo ,and lotions, to sitting out in the sun.the only thing I didn't try is the injections and I am not going to, No way am I having injections in my head. What I have found is my hair falls out when it wants and it grows back the same, so the only thing I can do is learn to live with it which it seams is taking me a very long time to do.
Permalink Reply by Solange De Santis on February 16, 2015 at 9:30am

Dear Sharion,

I've had AU for 17 years and it is my experience that there's never a point where you spike the football and say, "OK, this is it. I'm just fine with this now!" You just cope with it, daily, like any chronic condition and some days are better than others. And you find your support, whether partner, family, friends, meditation, prayer, aromatherapy, a pretty scarf, whatever! But I am here to tell you it is possible to lead a very full, happy life. Best of luck. We're all in this together and you're not alone. 

Permalink Reply by Pam D. on February 16, 2015 at 8:37am

I'm at that point now. My hair has come and gone over 3 years; I've gone from having a full head of hair, to almost nothing. This time has been the worst; I'm not sure how much will come back, or if it will. I was very aggressive over the summer, but my hair still fell out in the fall. I'm at the point of letting my body do what it will as I'm tired of the wonder and worry.  

Permalink Reply by coccinelle on February 16, 2015 at 1:46pm

Really no treatment walks I also lost my hair in one week and my hairs in one month that frightens. Sometimes, I have small regrowths but that lasts pasDepuis, I had height of the other diseases then my life became difficult to live. You have courage...bravo

"moi, je n'ai plu de courage, 5 ans, et aucun espoir, c'est trop dur à vivre...je dois travailler pour vivre et les gens sont dur... je me dis toujours que j'ai la chance d'avoir eu un enfant, juste avant de tomber malade...où, je ne serais plus là"

Permalink Reply by Mila on February 18, 2015 at 6:37am

I suffered from AA  for 32 years, since i was 10. The last two i got AU. The reason for AU is the stress i was exposed due to three miscarriages. I stopped the treatment for  two years because I want to get pregnant. It is my priority.Hope is always there :)

Permalink Reply by Jessica Hoschouer on February 19, 2015 at 8:16pm
So, I was diagnosed at the age of five. I Have always refused to do treatments. I have done a few but non ever worked so I just don't even try I never really have though. The way I see it is that God gave us this disease to help us learn, he finds that it is necessary for us to have this to learn, and he know that we are strong enough to handle it. He know who we are and knows everything that we can handle, some people may have this trial and have a hard time over coming it but others may have an easy time over coming it. EVERYONE HAS TRIALS... It is part of life, it is necessary for us to progress.

Always loving and here to help, Jessi
Permalink Reply by Kim on February 23, 2015 at 1:30pm
Good question. Ive had alopecia on and off for over 10years but in the last 3 years it got to the point where i tried anything and everything to treat it. Aug 2013 i had lost so much hair i was forced to get a wig. This was incredibly hard and i had alot of therapy. I couldnt even bring myself to say the word Wig,nevermind walk into a wig shop! Today im onto my 3rd wig and i am forever greatful that there are such great cover up options out there for us. To answer your question, i stopped trying so hard for treatment/cures after i made peace that i have no choice but to wear a wig and ACCEPT that this is a disease i have- a disease for which there is no cure, but a disease that doenst make me ill. Acceptance is your biggest hurdle. Resistance is suffering (as the buddhists say). I try my best to remain positive and not focus on what i dont have..but more on what i do! Stay strong Jessica!
Permalink Reply by Nammer on February 23, 2015 at 3:27pm

AU at a young age, once I hit grade 6 I decided to just stop treatments I accepted AU at a very young age so its never bothered me still today,

Permalink Reply by None on March 18, 2015 at 6:31pm

When I was 24 it all went.  I did treatment along the way which produced lots of side effects but no real regrowth.  Then at 27 it all grew back on its own, only to fall out again a few years later.  At that point, I did the scalp shots, but no decent regrowth. During 2 pregnancies it all grew back and even looked like my old normal hair but in both cases fell out again when my kids were 2.  Fast forward 15 years and I have had episodes of total regrowth with no treatment.  I now am hairless and have been for past 2 years.  So the long answer to your question is that I really stopped aggressive treatment in my twenties.  

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