Alopecia World
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Born with alopecia
I am looking for people out there who were born with alopecia. I was, and it seems like life has been a struggle for me. I still haven't learned to cope with having alopecia. I never knew there were web sites like this. I am hoping to find people who really understand.
Jessica
Jessica
Replies to This Discussion
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Permalink Reply by jessica on
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In my case, I have never had hair. It is nice to know there are people out there I can talk to about this. Thank you.
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Permalink Reply by JeffreySF on
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Hi Jessica,
I was 43 before I got my 1st spot. So just over a year now for me.
There are lots of people who have had alopecia forever on this site.
Welcome to Alopecia World.
Jeff
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Permalink Reply by Rachel on
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Hi Jessica. I was born with a full head of hair, but began losing it right away. I've been totally bald for nearly my entire life, so just about 24 years.
You aren't the only one. :)
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Permalink Reply by Carol on
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Hey Jessica
I started losing my hair when I was a baby so I know what it's like to always have had it. I'm 31 now and it's nearly been 10 years since I stopped wearing my wig. It's one of the best things I could have done for myself. It made me think about everything I've been through, the pain, teasing, hiding and embarassment, etc. I did not go through all of that in my past for nothing! I started a support group in my area and although many of them are newbies I still found it hard to connect with them as they did not grow up with this (most of them anyways). That part is still a bit difficult to deal with but that's why I made a group on here for those who grew up with alopecia:
I hope you find acceptance in yourself because you are a beautiful person! :)
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Thank you. I have finally found acceptance in myself. I have been wig free since 7/4/09, and have never felt so free. Thank you for all of your support. Jessica
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Permalink Reply by Ohio on
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Jessica,
I just joined this site in hopes of educating myself. I have a 9 yr old boy who was born with alopecia (or possibly a genetic disorder such as Ectodermal Dyspalcia, in which case, thankfully, my son only has one of the symptons...absence of head hair). I can't tell you how much time I have spent researching both possibilitys. I have traveled the country to see specialist, only to become more frustrated. I was told by a deremtoligst at UCLA, during one of my visits to a specialist, that there are only 5 reported cases of kids being born with Alopecia (so it sounds like we just need to find the other 3...lol). My son is very well adjusted at this point and extremly outgoing but I worry about how this will effect him in his teen years. Any feedback that you can provide me with would be truly appreciated! Talking to someone that has dealt with it their entire life is very beneficial.
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Only 5 people born with it? 1)Your son 2)Me 3)my brother chris(photo on my photos). I guess it only leaves 2 more. lol. Anyway, It's a good thing he is a boy. It's now the in thing for boys/men to be bald. I always felt that my brother handled it a lot better because he was a boy. I don't know how your son feels about it, but I know that I have never felt more free since I stopped wearing my wig on 7/4/09. Let me know if there is anything I can do. Jessica
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Permalink Reply by evapeace on
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Hi Ohio i have à five years old girl born with alopecia im from morocco but my baby was born in new jersey
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Permalink Reply by Eva on
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Hey Jessica, I just wanted to post that you are definitely not alone. I am 22, and was diagnosed with AA at age 2. Since then it has gotten worst and about 5 years ago it finally advanced to AU. Certain things have always been a struggle for me because of it, and every day I still learn how to cope. Growing up dealing with alopecia is hard, and was especially hard for me through middle school when I still did not wear a wig on a regular basis. There are other people who understand.
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Permalink Reply by Jackie on
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Wow...born with it eh? That's interesting. I did not develop AU until I was eleven years old. I am also 34 years old, and like you, life has been very challenging for me - I also wear a wig 365 days a year.
Ever since I found this website though; seeing the pictures of beautiful women sporting their skins ....the impact that it has had on me was almost instant...I have already take a couple pictures and put them up for the world to see.
I hope that one day you and I and people like us will see our absence of hair for what it really is...and that is it: absence of hair...nothing else.
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Finding this web site has had the same impact on me too. I have new pictures posted. One of my brother too. He was also born with Alopecia. I think his is totallis. He doesn't have eyebrows, or any hair on his arms and legs. Anyway, since July 4, 2009 I have been completely wig free. Here I am world. Nothing can stop me now. I hope thing work out well for you. Keep in touch.
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