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I think most derms focus on what the follicles look like, rather than just the hair loss. My follicles at the front, where the biopsy was taken, look enlarged and inflamed. I noticed that before I noticed the hairloss but didn't think it was significant.
I actually feel like most of my follicles look totally normal and it's difficult to see any scarring. The skin on my forehead looks normal too. Sometimes I think I can still see hair follicles! The skin is white...at first...where my hair line recedes but it does seem to get color once it is exposed to the sun.
But my hair follicles do not look inflamed to me at all. But that is where the hair seems to be disappearing the most...right at my hairline. Lost 2 to 3cm so far. The derm didnt seem to think follicles look inflamed but to my understanding you can still have FFA with out actually seeing the inflammation at the follicle, right?
Hey, MJ. I wondered if you went to your derm for a check up. You mentioned in your last post above that you were due back for a checkup, so curious what was said/discussed. Hope all is well - Lori (Lo)
I am so sorry to hear about your frustrating visit to the dermatologist. To help ease the frustration, I have a couple of thoughts. One, check with your insurance - you may be able to appeal the charges and not have to pay the doctor for that visit, especially seeing that nothing productive resulted. The appeal process may take some time, but in the long run, it will be worth it because it will send a message to the doctor. I get so tired of dermatologists not taking alopecians seriously and partnering with us.
Second, I do recommend you research and find a dermatologist to conduct the double biopsy. When I was first diagnosed with alopecia, I only had a single biopsy. The dermatologist diagnosed me with alopecia and sent me on my way. I had no idea there were so many types, and I was 21. I felt very much alone and afraid and overwhelmed. Ten years later, I finally gathered the courage to see another dermatologist who did the double biopsy and diagnosed me with androgenetic alopecia. My scalp hurts and itches ALL the time. These awful bumps erupt on my scalp but never produce anything like a pimple would. I've tried all types of shampoos and lotions and skin care products without being able to completely resolve the problem. What keeps it the most calm is using Cetaphil twice a day. I also shave what hair I have left because I wear a Freedom Wig. I use a Headblade for shaving.
I hope this information helps and that you find answers to your questions soon. Good luck!
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