Alopecia World
www.alopeciaworld.com
Gluten intolerance?
Hi - am taking my 11yr old daughter to see a trichologist who wants to test her for allergies, defiences etc. We have done this when she was younger but will get it another shot. He is a believer that gluten intolerance can be a trigger for the AA... has anyone ever heard this before? I will give it a try, I will try anything (other than steroids) as Sammy has now lost pretty much all the hair on her head. But I am a little sceptical as if it was this simple wouldnt we be there by now with a solution.
In the meantime my girl is needing love, confidence boosting, and empathy so am trying to get her in communication with some similar aged kids or teenagers that she can chat too if anyone can help
In the meantime my girl is needing love, confidence boosting, and empathy so am trying to get her in communication with some similar aged kids or teenagers that she can chat too if anyone can help
Replies to This Discussion
-
Permalink Reply by E Ski on
-
I'm a 20 year old and had been tested by a nutritionist/Oriental medicine expert when I was 18 who found I had different delayed food allergies. I went on a real strict diet for a long time... avoided gluten and sugar amongst other things. My hair has grown back and I haven't experienced any falling out since. I've even eaten regular foods that I shouldn't and still didn't experience hair loss. Definitely suggest doing this! It's hard to be so dedicated to the food deprivation, but it can be worth it! It takes time though so patience is key. My case took awhile because I had lost all hair on my head and most on my body and had used some steriods before I learned from this nutritionist as to how bad steroids can be for the body. I also got acupuncture eventually to stimulate growth. Hope this helps!
-
Permalink Reply by Julie R on
-
Hi there,
I'm wondering exactly how the acupuncture was. Do they put the needles in your head or all over your body? Do you think it helped? I was thinking of trying that out. I already get the steroid injections, and I don't think it's going to be a long term solution. I just have patches of AA right now, but I'd like the bald spots to stop growing. I'm willing to try a more homeopathic approach. Let me know if you have any suggestions. I guess I could try the gluten free diet just for the hell of it, but it seems pretty challenging.
-
-
Acupuncture is used to stimulate the hair growth, but cannot be solely used to grow hair back. It has to be paired with the other solutions to your body's problems. I do the acupuncture often and I do find that it helps stimulate growth in the areas I need. My acupuncturist targets the spots that need the hair and at the moment I don't have ANY spots (yay!).. just some thinner areas. Another thing--acupuncture is MUCH less painful than the injections (and healthier!). They're little pinches and don't sting as much. The steroids work to grow the hair back in the area they're injected in, but they DO NOT solve the problem as to WHY the hair is falling out. If you want to do the homeopathic approach, I suggest you stop the injections because the longer you do it, the harder it is to fix everything. The earlier you start this process, the quicker it'll be fixed (I wish I knew all of this from the start!!)
Oh I completely recommend the homeopathic route. My nutritionist is 100% positive as long as I stick with everything and don't go back to old habits, my hair won't fall out again.
The thing is, you may not even have a gluten intolerance. I know another girl who has lost some of her hair, but gluten isn't the problem (she actually even goes to the same guy that I do). The reason everyone thinks there is no cure for Alopecia is that there is no blanket solution... every person has a different reason for their hair loss. This is why it's hard to self diagnose and you'd really need to see someone who's into the oriental medicine and nutrition. If you do, make sure they check out the delayed response (and not just immediate response) allergies, vitamin D deficiency, yeast build-up, and heavy metals (these are the normal things according to my guy). Also, the gluten free diet is reallllyyy not as hard as you would think. They have SO many things out there, even just in supermarkets like Shop Rite. It's becoming a LOT easier to do gluten-free (if you have to).
-
-
Congrats on all of your success with your pain reduction! That's amazing!
Doctors won't go along with it because they believe medicine heals all. Medicine in fact masks the problem by creating a temporary "healing" solution. These autoimmune conditions must be fixed from the root of the matter.
Food allergies can have delayed responses (ie. a headache a day or two after you ate something bad). If you're getting tested for allergies, try to find out if whoever you're doing this through knows about this. Also your sensitivities might not be strong enough for a doctor to consider them significant, but they could still be there. For instance, you may be in a normal level, but it could be high normal or low normal and doctors will deem it fine.
I wish more people believed in this, but we're taught to sometimes blindly trust our doctors. It's a good thing you're doing and not just for your hair or arthritis, but for TOTAL body health! Good luck with everything :)
-
Permalink Reply by Loraine and Sammy on
-
Thank you all heaps for your feedback....it is so helpful. It certainly makes me believe that it is worth trying, its such a balance between trying everything and not giving false hope,expectations and disappointments to Sammy. We have appointment in mid August so will let you know how we go...thanks again
-
Permalink Reply by Dielle on
-
It could be a trigger in her case because they don't really know what triggers any given case but in my case I don't have a gluten intolerance ( I was tested for it in an allergy test). Anything is worth a try though and if it was a gluten intolerance that caused it its really hard to imagine how much bread you eat in a day until you stop, believe me I did the gluten free diet before I got tested for a few months lol. Best luck!
-
-
Hi Dielle
Thats right...its just trying to find what may trigger it, and again you're right - if we do find the trigger how do we get that removed out of life every day for Sammy. Like I said I don't want to build her hopes up and then have them dashed, I try to focus more of taking care of Sammy as a whole rather than her hair. She is moving to high school in a few months so the timing of this most aggressive AA is bad for her.
We are looking at wigs and "hats with hair" for the first time, and also Sammy is now at a point where she'd like to chat to other girls - I read that you lost your hair at 12 so am wondering if you would be someone that Sammy could be in contact with - who knows what she is going thru? Any guidance or words I could pass on would be welcome....thanks DIelle
© 2024 Created by Alopecia World.
Powered by
