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Has anyone ever tried Naltrexone (low dose LDN) for the AA?
Now that the AA is back, I noticed that I wasn't quite feeling at 100% like on a normal day for me, so went to the Dr today and he said my hormone levels had indeed changed so gave me a shot. Then we talked about the AA being so aggressive this time, and that he had been having some luck with a compound drug used to help reverse auto immune symptoms in patients with RA, MS and Chron's disease and thought that I would be a great candidate for it. Says it boost the immune system and helps to reverse some of the symptoms. He had it in his office, so gave me a 30 day supply of NALTREXONE also known as "low dose LDN". So am going to try this and see how it goes. He did also say he wanted me to continue to take the steroid injections since they worked so well the last time. He said that would help the hair to grow back, but the LDN would help to reverse the auto immune disease and in turn should keep the AA from coming back again. Worth a try anyway, and it is not an expensive drug as some of the hormone replacement drugs can be.
Replies to This Discussion
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Permalink Reply by onekeylady on
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Hey Manuela, that is great to hear about the pain from menstrual cycle. I am happy for you. I am still doing good. No side effects. No more hairloss, but still bald patches and a shaved head....LOL Trying to cope with the heat and humidity here. Figures we would have one of the hottest summers when I have a bald head for the first time...LOL I knew our hair kept our heads warm in the winter, but never really thought about the hair keeping the scalp protected from the heat of the sun in the summer. Doesn't matter if you wear a scarf or go bald, it is just as hot either way....LOL Did go swimming with a swim cap and I am one to tan really well, but had the swimcap a little too far down on the forehead so ended up with a tan line a little too low...LOL Won't do that again. Been working a lot and have not been online so really have missed being on this site. On vacation next week, so will have more time to write. So glad for you! Talk to you soon.
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Permalink Reply by Manuela on
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Honekeylady Hello, I'm glad to hear from you ... Perhaps to keep hydrated with creams of the head could help you stand the heat ...
A dermatologist told my daughter that hair regrowth can take up to three months, so we hope that in the fall will not have to put the cap on his head ... I know what the heat because I live in Sardinia, an Italian island located between Africa and Europe, the Mediterranean ... Hold on with the job if the holidays are close :-)
Best wishes
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Hi Manuela, I hope you are doing good. I am still doing great and the heat has come down a little, so have gotten better with the heat. I also found a wig that I am ok with, but it will never be like having your own hair. I have noticed that the spots are filling in from the outside and gradually in towards the center. I also noticed today a little spot that I have had for a couple of years that I thought was a scar because it has not had any hair there for a while, also is filling in with hair. It wasn't very noticable as the rest of my hair would hide the spot, but it is indeed also getting smaller. With time we will see how well it stays in, but it will be a few more months for it all to be completely filled back in. How are things with you and your daughter? Sorry, it has been a while, lots of working here, and husband getting ready for more surgery, so really busy with him and family, but all is good.
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Hello:) I'm sorry that your husband still has to undergo intervention, courage, will pass this time, everything will be all good ... I'm glad your progress, is still so hot here, the rest all right, I confirm that LDN appears to be doing well, yet I gave it to my daughter because she is now trying supplements, zinco and silicio, silicio Michael has spoken here in Alopecia World, and I also let him know that I found ... Too aware of these supplements if you have not done so, help for many diseases.
Look forward to hearing you soon with good news,
a hug
Manuela -
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Permalink Reply by Tallgirl on
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Here is what I found about Naltrexone:
Naltrexone is an opioid receptor antagonist used primarily in the management of alcohol dependence and opioid dependence. It is marketed in generic form as its hydrochloride salt, naltrexone hydrochloride, and marketed under the trade names Revia and Depade. In some countries including the United States, a once-monthly extended-release injectable formulation is marketed under the trade name Vivitrol. Also in the US, Methylnaltrexone Bromide, a closely related drug, is marketed as Relistor, for the treatment of opioid induced constipation.
Naltrexone should not be confused with naloxone (which is used in emergency cases of overdose rather than for longer-term dependence control) nor nalorphine. Both nalorphine and naloxone are full antagonists and will treat an opioid overdose, but naltrexone is longer-acting than naloxone (although neither is an irreversible antagonist like naloxazone), making naloxone a better emergency antidote.
Safety
In alcohol dependence, naltrexone is considered a safe medication. Control of liver values prior to initiation of treatment is recommended. There has been some controversy regarding the use of opioid-receptor antagonists, such as naltrexone, in the long-term management of opioid dependence due to the effect of these agents in sensitising the opioid receptors. That is, after therapy, the opioid receptors continue to have increased sensitivity for a period during which the patient is at increased risk of opioid overdose. This effect reinforces the necessity of monitoring of therapy and provision of patient support measures by medical practitioners. All individuals taking naltrexone are encouraged to keep a card or a note in their wallet in case of an injury or another medical emergency. This is to let medical personnel know that special procedures are required if opiate-based painkillers are to be used.
Low dose naltrexone
"Low dose naltrexone" (LDN) describes the "off-label" use of naltrexone at low doses for diseases not related to chemical dependency of intoxication such as multiple sclerosis. Although there have been dramatic claims about its efficacy in treating a wide range of diseases including cancer and HIV, these claims are not generally supported by scientific evidence.[21] This treatment has gotten significant attention on the Internet, especially through websites run by organizations promoting its use.[22]
Behavioral addiction
There are indications that naltrexone might be beneficial in the treatment of impulse control disorders such as kleptomania (compulsive stealing), trichotillomania, or pathological gambling.[26] A 2008 case study reported successful use of naltrexone in suppressing and treating an internet pornography addiction.[27]
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NIH gave Dr Smith, Professor of Medicine Penn State $500,000.00 to study LDN and Crohn’s disease. Dr. Jill Smith’s recently completed low dose Naltrexone trial with Crohn’s patients in 2010
1. 45% of the 40 patients achieved remission inside 12 weeks.
2. Healing was shown in colonoscopies.
Naltrexone Therapy Improves Activity and Promotes Mucosal Healing i...
There are only a few pilot studies on LDN, but more studies are on the way.
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Permalink Reply by Mike Staffieri RHN on
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legs cramps and restless leg syndrome are signs of magnesium deficiency
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Hi Onekeylady,
It has been a while since anything has been posted to this forum. I hope all is well with you and was looking for an update, if possible. Have you maintained usage of LND since 2011 when you started? Has hair loss halted since inception of use?
I am currently looking for a doctor who prescribes LDN and was hoping you would share your Doctor's name and area of the country.
I am in West Tennessee if anyone else has any suggestion. Willing to travel w/in reason to a doctor that does not have a 6 month wait for appt like I have found. Thank you so much for the follow up and sharing your story!
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