Replies to This Discussion

Permalink Reply by Karli R. on November 15, 2011 at 1:50pm

Hello Alicia!

I am 21 years old and started losing at age 19. If you want to talk about it, please contact me! Coping stages are rough, but together we can get through it! :)

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Permalink Reply by Ming Leigh on November 16, 2011 at 12:42pm

Hi,
I have Alopecia Totalis. I know its rather painful seeing your lovely, full head of hair disappear especially in this "beauty" world we live in where outward appearances seem to matter so much. It's all about that "Barbie" figure full, gorgeous hair, skin, teeth etc.

But I am starting to realize that being completely bald doesn't make me who I am. I'm the same person as I was before ...just without hair :) Yes, being human, we all have our0 good days and bad days but I think when you feel depressed you need to think about all the positives in your life and how much your family and friends care about you and everyone here on Alopecia World :)

I only discovered this forum after I got enough nerve to finally open a google page and search for wigs, I scoured the internet for months before finding the courage to place my first wig order but then I also discovered this forum Alopecia World and I started reading about so many people just like me and how they have learnt to accept their fabulously sexy head and its really inspiring. So start today, and start clicking on people's profile and reading about their journey...it sure does help!

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Permalink Reply by Bald and Fabulous AKA Terri on November 18, 2011 at 11:22am

know you are never alone, we all deal with this in different ways. I also had many thoughts of not continuing on. But that is never the answer. And please know that with you simply posting here and asking for help and sharing with us all, is a step in the right direction. As long as you keep reaching out, you will make it thru this period.
Please check out some of my blogs and I hope you find some inspiration there.....
http://www.alopeciaworld.com/profiles/blog/list?user=1ki8a6n99p0dq
Life is beautiful and so are you. You have incredible strength

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Permalink Reply by velvet on November 20, 2011 at 6:49pm

hugs the best thing to do is not let it bother u too much dont try and end ur life tbh its just hair i am 17 and got it when i was 11 ive never wanted to end my life becuase after all i am lucky its not like it really affects my health there are so many worse things to have i know its hard but just think how lucky u r love to u xx

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Permalink Reply by Heather on November 22, 2011 at 12:29am

Hi Alicia,

Hope you're doing alright! :) I'm 17 and have had alopecia since I was 11. I think it was probably easier for me to lose my hair at a younger age, but it is still pretty similar now. Losing your hair sucks. I'm not going to sugar coat it or anything like that... It sucks. But then you get past it. Losing my hair was one of the hardest things, but now that I've dealt with it and grown from it, I wouldn't trade this disease for anything. It sounds crazy, but having Alopecia has made me such a stronger, more confident person. It seems so hard now, but there are ways to deal with it! I have so much fun with my wig, and I've come to realize that there are a lot harder things one can encounter in their lives. There are definitely those times when I'm just like ARGHH this would be so much easier if I had hair. But then you get over them. You feel like a guy will never like you, and then you meet someone who doesn't care. You will meet so many obstacles, and you will overcome all of them.

We've all done it - we're all living proof that you can do it too! Any time you need to talk or want to complain or need help, we're here :)

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Permalink Reply by Micheal on November 26, 2011 at 1:59am

hi im micheal,im 25, i feel the same, my hair is half gone and im so embarassed to go out without a hat on, iv got aa as well and had it for about 8 months now n have started shaving my head but u can still see the diffrence between the bald spots and my shaven spots because my hair is that dark, i dont know to cope with it myself to tell you the truth iv just started some treatment of tablets and creams but they seem to be doing nothing just hope it doesnt last forever

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Permalink Reply by alicia on December 6, 2011 at 10:32am

Hey everyone I've been m.i.a for a while because I tried not to think about my situation:( unfortunately at some point I've got to deal with it and try to cope. I just want to thank all of you for the beautiful words of encouragement and hope, it means so much to me. I cannot express how humbly greatful I am to each and every one of you that read my blog and actually replied. Yes I admit that I was absolutely wrong to give up on life and God. Its still extremely difficult to accept it, which is why I'm taking it one day at a time. Alopecia world really changed my outlook and perspective about alopecia. We are BEAUTIFUL people, I just want to wish all of you Happy Holidays. May we make the new year ours. God bless. I love you guys so much. Suuuuuper beeeeeeeeeeeeeg hugs!(*.*,)

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Permalink Reply by Marieca on December 19, 2011 at 2:03am

Hi Alicia, as most of us here, I know exactly how you feel. I was about 25 when i started losing my hair i am now 33 and i have totalis. When i got alopecia i had no one to talk to about it. i isolated my friends and family and went through it all alone during the transition from areata to totalis. I literally cried every single day for probably 8 months asking God why is this happening to me what did i do wrong. I still cry when i tell my story sometimes. At the age you are there are SO many other factors that are affected by losing your hair like dating and having a social life. You dont realize how important hair is to your identity until you lose it. It wasn't until I accepted what i had and started telling people about it that i began to get comfortable with it. I know that what i have been and am going through is to help someone else that I meet with the same problem. If you ever want to talk please inbox me any time :)

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Permalink Reply by TurtleShell on December 23, 2011 at 12:25pm

Hey there, beautiful Alicia...and you ARE beautiful!!!
You've found the right place for support. I just found AlopeciaWorld myself, and am so grateful to finally discover a community where people know JUST what I'm going through! I can identify with your emotions about losing your hair. I started my first shedding cycle when I was 11; had another when I was 21; and now I'm in the midst of my third and worst. I'm losing most of my hair, and this time it's not growing back. I cut my hair WAAAAY short (I look like I belong in boot camp, LOL!), and I "wear my hair" (wigs, woo hoo!). I'm 36, so I've had time to deal with this and get to the point where I'm more comfortable with it; I've done my grieving. Give yourself time to grieve. And it IS grieving...you are so young, and this is a HUGE change to go through at your age, and especially with your medical history. It is obvious that you are a VERY strong young woman; you've endured so much already in your life. I know it doesn't feel like it now, but believe me when I say that alopecia will make you even stronger. You will find a new level of confidence in yourself, and it will be a confidence NOBODY can touch or take away from you because it will not be rooted in your appearance. I know that it SUCKS SO MUCH to have to be this strong right now -- but from what you've told us about yourself, you can totally do this!!! We are here for you, and if you ever need anything, any support at all, please feel free to inbox me. Hugs to you, sweet girl, and have a very Merry Christmas!!

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