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Just curious: Did you always have really thin hair or did you used to have thick luscious hair that left?
So. I'm curious. Did most people always have thin, fine hair their whole lives and then they started to have hair loss or did many people have thick and profuse hair that eventually developed hair loss?
For me, I have always had very fine, thin hair that was made fun of even in childhood and throughout my life and then eventually I developed Areata and/or Androgenic baldness that was too thin to ignore. What are other people's experiences? Thanks to all who share.
Replies to This Discussion
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Permalink Reply by Julie Koch on
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Hey Karma! They tested for everything under the sun. I went to over 11 doctors and specialists throughout Wisconsin and was finally diagnosed with CTE. They did a pull test and came to that conclusion because I didn't have the "bald" patches of alopecia areata. I have struggled with eating disorders for 18 years but they don't think that contributed to the hair loss. I only weigh 82 pounds right now and a few years a go was 57 pounds. It obviously had to have some effect on my hair.
I also was diagnosed with Burning Scalp Syndrome and Trichodynia which means "scalp pain". It was so severe they sent me to a pain clinic where I got Bilateral Occipital Nerve Blocks (injections) on both sides of my scalp. They didn't help. My dermatologist also diagnosed me with Seborheic Dermatitis. It's pretty bad but I use medicated shampoos and prescription shampoos to try to keep it at bay. Lots of itching and scaling and burning. It changes every day and I have found nothing that really works to help it.
I never had a biopsy done because the doctors didn't think it was necessary and didn't want me to be in more pain. They said the pain could be a nerve issue but the nerve blocks didn't work, so I don't know. I was also on Spiro but couldn't take it because I was fainting and blacking out on it. The texture has changed to dry, brittle, no shine, thin like... It used to be SO thick and the diameter of the hairs were huge. Now I feel like I have the hair of a cancer patient. It has bad days and worse days...never really a good day. Please feel free to ask questions!
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Permalink Reply by Christine on
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I had pretty good hair before AA, Pretty thick. Actually was one of my best features, people would often comment on my hair. Makes me sad to remember.
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Permalink Reply by karma on
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Julie... I used to compete in fitness comps and the I was a personal trainer (and smoker...I know terrible), but I had about 17% body fat so my doctors told me I had either naturally raised my testosterone through training or i possibley had pcos. So I went on spiro and stopped working out (moredue to the fatigue I had back then) and I got even more dizzy than usual (and I am always dizzy/tired) and I don't remember the hair shedding in a scarey way then but I could still take strands out just by running my fingers through it. But my strands have also gotten thinner, feel dry and limp, like I don't take care of them and I am going gray fast (some are full on white or non pigmented).. I saw a rheumatologist today just to rule autoimmune out, she said she wants me to see an allergist and an endo (again) because they can try to figure out why my body is producing so much histamine....the itchiness all over is so brutal its preventing me from sleeping, I wake up every few hours scratching my scalp....I have to take benedryl at nite or I turn into woogie from "there's something about mary" and I'm probably gonna have to wear mittens to bed if I don't knock it off.
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