Topical Xeljanz

we have a few threads about oral Xeljanz treatment but nothing dedicated to information about the topical form. The cream seems like it would have less systemic side effects (more suitable for children?)

Are the people who have been using the cream getting it prescribed specifically as topical, or are you being prescribed it specifically or are you being prescribed oral and having it prepared as topical?

is there a separate trial being run for the topical version?

Does the topical treatment warrant a distinct information thread separate from the oral treatment?

My son is too young to participate in any trials, particularly of oral medication, but I'm curious what will be available to him in the future

thank you! 

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Permalink Reply by Nicolas on May 7, 2016 at 5:00pm

Football fan are you in topical only or also in pills? have you had any grown?

Permalink Reply by Football fan on May 7, 2016 at 7:39pm
Pills and cream.I am one of the only ones that hasn't had any regrowth on pills.Weird because I'm not AU.
Permalink Reply by Peachfuzz on May 7, 2016 at 7:44pm

Nothing as yet, I only did 12 weeks on meds because that was the protocol of the clinical trial I was participating in, enough to see any response apparently. Just topical, no oral Jaks

How are you doing Football fan? getting growth?

Permalink Reply by Football fan on May 7, 2016 at 8:39pm
I think it is helping.My hair did stop falling out.Going to the doctor in 2 weeks she took pictures so we will be able to compare.
Permalink Reply by Beth on May 7, 2016 at 11:33pm

Hi Football Fan,

Best of Luck! I hope both the cream and the pill are working for you. I know how deflating it can be when a treatment does not seem to be working. We've been there and it is very upsetting.

I am especially interested in the Topical because I am looking for hope for my daughter's condition.

Thanks again for contributing!

Permalink Reply by Nicolas on May 8, 2016 at 2:18pm

I hope it'll work good for you after all this time(i remember you are in cure from a lot of time) noone important side effect?

Permalink Reply by Nicolas on May 2, 2016 at 5:41pm

Are you using topical only in eyebrwon or also in other sectores?

Permalink Reply by Peachfuzz on May 5, 2016 at 2:32am

I was using topical Rux and Xel on eyebrows and two areas of my scalp

Permalink Reply by Nicolas on May 7, 2016 at 12:09pm

Thank you for your answer ...

Permalink Reply by gowml on May 8, 2016 at 10:43am
I have been on 2% topical Tofacitinib for 9 weeks now without any response. The pharmacist and my doc told me that some people are responding, but I won't believe it till I see it. It's too bad, since I really had high hopes for it as a safe treatment.
Permalink Reply by Nicolas on May 8, 2016 at 2:16pm

why they do not try 5% instead of 2%? 

Permalink Reply by Patricia on May 26, 2016 at 4:18am

I have just spoken to a pharmacist who is going to convert 56 tablets into approx. 30 gram cream for me. I had to get a script from my Dr first. I am not taking any oral xeljanz. Cost is approx. $2000 but he said the cream should last 3 months. I have AAT with 50% hair loss.

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