Alopecia World
www.alopeciaworld.com
Update: 1 year on Tobacitinib!
HI All!
March 1, 2019 marked my 1 year Tofacitinib.
Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.
Started on 10mg per day and bumped up to 15 mg per day in August of 2018.
I saw my doc at Columbia University in NYC on my 1 year mark.
He drew my labs and everything came back great!
I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)
My doc has me starting to wean off the meds, here is his plan for me:
I went down to 2 pills per day (10 mg per day) starting March 1,2019
After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.
After 3 months, if no shedding, no patches, he wants me to try to go off completely.
Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE
You can use it once per year. It wasn't free for me last year, but it is now!
I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.
No side effects. Current pics below. Last time I buzzed was Dec 16, 2018
Also a baseline pic from March 1, 2018
Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.
Love of love,
N
Replies to This Discussion
-
Permalink Reply by Cocopuffz17 on
-
That is absolutely amazing, especially after being AU for 7 years! Do you have some pictures to for comparisons ? So pumped for you! Whoop whoop!
-
-
Hi which meds were you using , ? And how long did it take
-
Permalink Reply by NicoleT on
-
Hey guys
Heres the loss that happened with my unfortunately dosage reduction and you can see the quick regrowth that happened once I went back up on dosage. Interesting That if you intervene early the new growth seems to come in brown instead of white
- Attachments:
-
-
Well im glad it came back fast and didn't lose pigment!
-
-
Hey Nicole! Is that how it looks like now or when you had lowered the dose?
-
-
I completely agree. The faster you intervene, the faster the regrowth and more likely to be pigmented
-
-
Hey Nicole,
Very happy for you! What is your plan regarding the dosage? Are you planning to stay on 20mg indefinite?
Thank you
-
-
Just to give an update on my situation , I’m on 2 beacon tablets per day for the last 7 weeks. My eyebrows have completely regrown , my beard and side burns are 80% fully regrown. My eyelashes were mostly previously unaffected but have regrown very thick. Small things like the hair on my fingers have returned which is weirdly exciting. Hair on my head is almost fully regrown and the areas where they are white hair is coarse hard feeling as if I had shaved my head to a number one blade in a barbers. I have suffered zero side effects and am getting my blood checked every 2 months. Going to order 500 pills on my next order. So far I can attest that this is the best treatment I’ve ever embarked to rid myself of this horrid disease and hopefully I’ve dropped kicked it out of life for good.
-
-
That is great bibby!! Were the spots that grew back completely free of hair prior to medication?
© 2024 Created by Alopecia World.
Powered by
