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Update: 1 year on Tobacitinib!
HI All!
March 1, 2019 marked my 1 year Tofacitinib.
Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.
Started on 10mg per day and bumped up to 15 mg per day in August of 2018.
I saw my doc at Columbia University in NYC on my 1 year mark.
He drew my labs and everything came back great!
I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)
My doc has me starting to wean off the meds, here is his plan for me:
I went down to 2 pills per day (10 mg per day) starting March 1,2019
After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.
After 3 months, if no shedding, no patches, he wants me to try to go off completely.
Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE
You can use it once per year. It wasn't free for me last year, but it is now!
I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.
No side effects. Current pics below. Last time I buzzed was Dec 16, 2018
Also a baseline pic from March 1, 2018
Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.
Love of love,
N
Replies to This Discussion
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Permalink Reply by Apple on
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When your order from beacon does it come direct to you? Why was one shipment destroyed?
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Permalink Reply by NicoleT on
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Hi!
All of my beacon shipments have come straight to my door from DHL or refular US mail.
I only ever had one shipment siezed/destroyed and that was from india via fedex of what was apparently supposed to be "real Phizer Xeljanz"
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Thank you so much for your help, I’ll order from them right away. So happy for all of us that are on xeljanz and have our life back. Love M
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Permalink Reply by kevin on
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hi Nicole I did a blood bilab I have a slight increase in cholesterol and potassium ..
have you had side effects i'm xeljanz for 2 years
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Nicole, So if a shipment is seized/destroyed, what happens then? Do you get a refund of the money you paid back?
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No apple.
you wire the money to HSBC. this is a major bank
Bank: HSBC-HONGKONG
Address: 1 Queen’s Road Central, Hong Kong
SWIFT: HSBCHKHHHKH
Beneficiary: BEACON Medicare Limited
Flat 2004, 20/F, Beel House, Block A
525-543 Nathan Road, Yau Ma Tei,
Kowloon, Hong Kong
Account No.: 023-497712-838
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Hi NicoleT..
Congrats on the hair regrowth! So glad they finally found a med that works for us...
I had 1 question- I think you said you got sick a time or 2 In the last on tofacinix ?? Did you keep taking it or stop for a week or so til you took all your antibiotics?
Thanks
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All good to continue tofa on antibiotics. No need to stop as per Columbia docs
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Hey Nicole! How’s the maintenance of your growth on xeljans going? I know you had a little bit of shedding a while back. How is everything now??
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