Update: 1 year on Tobacitinib!

HI All!

March 1, 2019 marked my 1 year Tofacitinib.

Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.

Started on 10mg per day and bumped up to 15 mg per day in August of 2018.

I saw my doc at Columbia University in NYC on my 1 year mark.

He drew my labs and everything came back great!

I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)

My doc has me starting to wean off the meds, here is his plan for me:

I went down to 2 pills per day (10 mg per day) starting March 1,2019

After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.

After 3 months, if no shedding, no patches, he wants me to try to go off completely.

Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE

You can use it once per year. It wasn't free for me last year, but it is now!

I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.

No side effects. Current pics below. Last time I buzzed was Dec 16, 2018

Also a baseline pic from March 1, 2018

Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.

Love of love,

N

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Replies to This Discussion

Permalink Reply by xavx on March 15, 2020 at 6:08pm

The problem is actually the inability to have kids. And i would like to increase my odds not reduce them.  :)

Permalink Reply by bibby on March 16, 2020 at 5:15am

I’m a father of 2 kids (5 & 7 years old) , zero autoimmune or alopecia issues in both kids. My own parents and brother also zero autoimmune or alopecia issues. Seems to be very random selectivity in regards to alopecia and who gets that little packet of misery in their lives. Only a small percentage chance of passing it on. 

Permalink Reply by DpDbuddy on March 15, 2020 at 7:11pm

Hey bud I'll take the 5mg if you will sale em separately..msg me 

Permalink Reply by NicoleT on March 15, 2020 at 7:50pm

Hey Xavx

happy to take everything off your hands. 
just messaged you.  

thanks and good luck on the fertility journey!!!

Permalink Reply by Carma Harper on March 22, 2020 at 6:04pm

WOW!!! Your hair looks great!!

Permalink Reply by yp on March 25, 2020 at 10:16pm

is anyone here taking extended release - tofacinix XR 11mg? if so, how much is it per box from Beacon?

any difference between taking the XR version vs 2 x 5mg of the regular version? 

thanks in advance!

Permalink Reply by NicoleT on March 25, 2020 at 10:28pm

I take the beacon 11XR at night.

Its $27 for a box of 30 so its a better value than the 5mg at $15 per box of 30.

I take a 5mg pill in the AM and 11mg pill at bedtime.

Permalink Reply by DJ88 on March 26, 2020 at 1:44am

Hi, if you don't mind me asking are you buying these on beacon from America?

Permalink Reply by NicoleT on March 26, 2020 at 1:33pm

I live in USA yes.

Permalink Reply by NicoleT on March 26, 2020 at 8:40am

Here's an update on my hair.

I've had many haircuts.

I'm exactly 2 years on tofacitanib from AU.

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Permalink Reply by yp on March 26, 2020 at 8:44am

looks awesome! really appreciate all the info you've provided to myself and others on this forum. cannot be thanked enough :)

Permalink Reply by Nat on March 26, 2020 at 10:32am

Awesome!

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