Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Replies to This Discussion

Permalink Reply by AlopeciaDestroyedMyLife on November 1, 2015 at 9:32am

Hi Merry,

What dosage have you been taking prior to 4 tablets?

Have you had no hair (not even vellus) at all?

Permalink Reply by singh on October 29, 2015 at 6:37pm
Does anyone know what's going on with Dr King,s data ? When is he releasing it etc??
Permalink Reply by Xeljanzmiracle on October 30, 2015 at 11:10am
Three Month Update: Hair getting longer and darker, eyebrows on both sides coming in. A few dark eyelashes on left side trying to emerge from under upper lid. For some reason the left side of my scalp,etc is more dominant. Pictures below.
Permalink Reply by Sabri on November 2, 2015 at 10:08am
Permalink Reply by Xeljanzmiracle on October 30, 2015 at 11:19am
Better pictures
Attachments:
Permalink Reply by Jcortez05 on October 31, 2015 at 6:55pm
Does anyone know wants in a red box from Pfizer ? I won't be home for a week and that's what I received ( lady upstairs told me ) and am curious to know :-:
Permalink Reply by AlopeciaDestroyedMyLife on November 1, 2015 at 9:33am

Please upload a photo of the box and I will be able to tell you.

Permalink Reply by serg navaro on November 1, 2015 at 9:50am
Pfizer sends a red tube with all the information on xeljanz along with the Pfizer co-pay card, no pills are included
Permalink Reply by Jcortez05 on November 1, 2015 at 10:03am
Question .. I got a copay card online .. If they send me a copay card would I be able to use both?
Permalink Reply by serg navaro on November 2, 2015 at 11:21am
Either one is fine, it's just a hard copy of the one you got online
Permalink Reply by Jcortez05 on November 2, 2015 at 11:24am
I had her open it and the ID#s are different
Permalink Reply by Mike on November 2, 2015 at 10:23am

Anyone taking this in Canada?

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