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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Juan on
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Hi
How did you get Xeljanz? where are you from? I am from Venezuela and I'm looking for it everywhere
Thanks
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It will vary from person to person. The key is to monitor progress in any form. Any progress tells you the meds are working.
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Permalink Reply by Xeljanzmiracle on
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CONGRATULATIONS JCortez05! You are definitely on your way. That is how most of us started. Below are pictures of my first regrowth in September and how my hair looks now.
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Permalink Reply by Jcortez05 on
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Thank you! How long did it take for you to notice the growth and also how long til your pigment returned?
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I had regrowth in a month like you, and the pigment started within a couple of weeks after that. My eyebrows started coming in dark right off the bat. Some of my eyelashes started out blonde, but some came in dark. You are on the right track. Stick with it!
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I also live in NYC, would you post the name of the doctor and telephone number...Also, where did you fill the script and how much did it cost?Thanks
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thanks to this thread i managed to get xeljanz from turkey, if someone is going overthere and needs my help i can recommend you pharmacies, hotels, or whatever you need, let's keep the chain
also , has someone managed to get it from Russia?. i think it might be even cheaper...
and about the tax refund. it was impossible for me to get it, i went to the tax refund office in the airport and was told that medicaments, restaurant bills and so on are not elegible for a refund..
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How much does Xeljanz cost in Turkey? How much tablets did you buy?
Please Keep us updated on your progress with the treatmet
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