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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Xeljanzmiracle on
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Great Serinaadele! Its interesting how our regrowth patterns are so similar. More hair on the crown, less in certain areas, the same resistant bald spots, etc. Our heads look about the same right now. I'm on month 5, ur a little bit ahead of me.
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Permalink Reply by Hilda on
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Hello dear serinaadele
Congratulations for your amazing progress!
I just want to know howmany mg of the xeljanz did you use during those 6 months and also howmany are you using already?
Who's your doctor?
Pleaseeeee tell me im begging you to answer my questions as soon as you can
As you said hair for me is like heart so pleas let me know
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Permalink Reply by sadele on
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Back of head
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This sides are still really bare and the hair itself is very thin compared to what I had before I lost it all. My hair was my "signature", I would say. My safety blanket. So losing it was very difficult for me.. But I known it is for all of us.
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Permalink Reply by Joao Piva on
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I can imagine how much difficult it is for a woman. For men is not that hard, but I had nails problem also and the lack of eyebrow makes me look strange. I started to use glasses even without much need.
As I see your hair is coming back well, don´t worry.
I still have some hairless spots in my head, and it seems that they won´t go away if I don´t start with a higher dosage. I´m waiting my doctor´s directions. My blood works are very well, thanks god.
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Top: December of 2006
Bottom: March of 2007
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Some of my male and female friends encouraged me to "stay bald" cause they like how my features stand out more. You are another one Joao. You look good with or without hair. Your eyes really stand out.
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Thanks for the complement.
Is very important for me to avoid getting fat.
With or without hair. Rsrsrs
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I was talking about your face and your head, lol! Your eyes stand out more because of the baldness. Bald IS BEAUTIFUL on many individuals. Just when I was getting used to it, had accepted it for myself, and theown most of my wigs away, I got approved for Xeljanx, lol! So, if I can't medically or financially, afford to stay on it in the future, I learned that many people thought I was beautiful bald and had an ideal head shape,etc. Who would have known? I hid my baldness for 5 years with wigs because I thought people would think I looked like a MONSTER. I was shocked and amused to when complete strangers on the street would stop and tell me I was beautiful and they "loved my hairstyle" lol!
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There is a funny fact here.
When I lost my hair, facebook wasn´t around and it was hard for me because I met some friends (after get bald) and some of them wouldn´t recognise me right away, others cryed when saw me totally hairless. Now with the facebook it is easier to show the progress and more people recognise me after months (I´m not a show off). They are facebook updated. Lol.
Some people make fun of me, some avoided getting closer, but real friend are real friends. They don´t make jokes about, they want to help...
I remember when news about Xeljans appeard on the internet, I recived at least 20 posts shared by my friends. They were more concerned about the alopecia than I was. I got used to it, really. Well adapted after 7 years, and how could I not be.
One thing I´m sure... like I said before in other post... I don´t like to get fat, and I belive that the treatment is not helping me with weight loss.
Right now I´m a chubby hairy one. rsrsrs
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What does rsrsrs mean? I noticed you typed it a few times.
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