Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Permalink Reply by mrappe7@gmail.com on March 28, 2016 at 11:19pm

Yes.. I had white hair for a very long time.. First 3 months no hair and than white baby type hairs for another 3 to 4 months.. I am now on 20mgs a day and have full hair growth

Permalink Reply by Fenster on March 29, 2016 at 10:49am

Can you tell me your experience please with the Hardship program?  What is the income limit, and what does the hardship program provide.  Thank you very much and good luck.

Permalink Reply by Xeljanzmiracle on March 29, 2016 at 6:06pm
Fenster, call Xelsource for questions about Pfizer's Hardship Program at (855) 493-5526. They can answer all your questions and mail you an enrollment form for you and your doctor to fill out.
Permalink Reply by Xeljanzmiracle on March 29, 2016 at 4:18pm
Congratulations on your full regrowth mrappe7!
Permalink Reply by Football fan on March 29, 2016 at 6:11pm
Hi mrappe7 How long have you been on xeljanz and did you go from 2 pills a day right to 4 pills.And how long have you been on 4 pills did you see a big difference on 4 pills?how long are you planning to stay on 4 pills.Would love to do 4 pills for a quick burst to really get things going.Im the the slowest responder on this site but not giving up!!
Permalink Reply by 3ebdie on March 29, 2016 at 6:17pm
Picture would be nice :-)
Permalink Reply by Starshine on March 29, 2016 at 6:26am
Hi HS, My hair has come back all mostly white. I posted a pic a few pages back. It is not as thick as it was either, but it is not so thin that you can see any scalp. The hair is very sowly turning dark. I have dark hair on the sides and back now and it is starting in the front. I have been on Xeljanz for a year now and it has been a slow transition. It is still 80 percent white, but every day I see a little more dark hair. It sounds like you are responding and the injections might help speed it up. Don't be discouraged, not everyone starts with dark hair.
Permalink Reply by sultan h on March 29, 2016 at 2:23pm
My Update : I have been on Xeljanz one week
my remarks about this medication.
it make nails very long and quickly , no side affect
good start with nails hope to start with my hair soon, we have time
and I'm in the beginning , I don't need to give up anymore
Permalink Reply by Xeljanzmiracle on March 29, 2016 at 4:26pm
Look for hair in about 3 more weeks sultan h.
Permalink Reply by sultan h on March 29, 2016 at 5:08pm
I will Miracle, I have been 2 pills a day, i will see after 3 week more
hope to help my eyelashes and eyebrows it's more important than my scale hair
I would like to thanks all people how recommend me to use Xeljanz
,,,(if all my hair regrowth , I will but my sun name Zeljanz Lol hhhh))
thanks all and see you next updates
Permalink Reply by Xeljanzmiracle on March 29, 2016 at 5:45pm
Sultan h. This is how my hair looked at first. It was so light you could barely see it compared to now.
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Permalink Reply by sultan h on March 29, 2016 at 5:59pm
wow that's really amazing and your eyelashes and brows regrowth
Thant give me hope .miracle have you take 3 pills or only 2 pills
since your day 1 . but defenlty work with you

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