Alopecia World
www.alopeciaworld.com
Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
-----------------------------
AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
-
Permalink Reply by Xeljanzmiracle on
-
No I don't. Call Xelsource. You don't know whether you will qualify or not. I was told some individuals make up to $75,000 a year and still qualified. Some insurance companies are now covering Xeljanz after initially denying it.
-
Permalink Reply by dorseygregory on
-
Not sure if you are still on this site. My wife has alopecia and it has since progressed to the full universalisis. Complete hair loss all over her body. I want to help her get her confidence back and keep her from sinking deeper and deeper into a depressed state. My question is How will they allow her to get the medicine if she has no prescription from her Doctor? And if the Doctor refuses to give her the prescription. We have been researching this pill since 2013 and would really like to try it to see if it will work.
-
Permalink Reply by DJ88 on
-
Ok, I found this and Im not exactly too sure what it means. It's about Jak Inhibitors. How is this beneficial to us? I thought it meant Jak Inhibitors could be getting covered but I may be wrong.
http://www.streetinsider.com/Corporate+News/Aclaris+Therapeutics+%2...
-
-
Posted this a few days ago. This company Aclaris acquired this other company called Vixen. Vixen owns the intellectual property (IP) that was produced in the Columbia study of JAK drugs. Dr. Angela Christiano is also one of the founding members of Vixen (not surprising since she worked on the Columbia study). Not clear what this means since I'm not sure what exactly the IP is but think you can draw two conclusions: 1) Aclaris believes there's some future in JAK drugs for hair loss so are acquiring assets that position them to take advantage of that market, and 2) Aclaris is also acquiring Dr. Christiano for her ongoing research (she's commented in the past how lack of funding is a challenge to solving the AA riddle).
-
-
something big is likely going on here as the CEO of Aclaris also happens to be the CEO of Follica. And the co-founder of follica is George Cotsarelis from UPENN... My thought is that George wants his wounding technique combined with a topical JAK and to be the co-curer of AA/AU/AT...
-
-
so now leading alop. dr christiano, is attached to leading dr cotsarelis, and are attached to UPENN and Columbia, and a publicly traded company... the $ is there, the science is there (but i sense could use some tweaking), now some people are going to try to find out how to package it all to cash in on profits...
btw dr christiano has AA or AU, right? Does anyone see her ? is she on jak?
-
-
Gcobb. I see a dr Lindsey Bordone at Columbia she works extensively with dr. Christiano. If you are interested in getting xeljanz prescribed you can go to her.
-
-
just read doms post
hey dom you idiot you yourself drink alchohal and you talk about health lol
who the hell you are to give me health advice when you take extremely harmful drug like alchohal ? NO ALCOHOL USER HAVE RIGHT TO GIVE ME ANY ADVICE !!
just look at you disgusting body....i am healthy and handsome with or without hair and get laid unlike you.
you skinny fat slob you talk about "acceptance" then why dont you accept me as i am or whtever i do ?? hun ?
keep drinking like a loser..i despise you .
-
-
Hey A LAD INSANE.
Your obviously have lost the plot since having Alopecia.
If you were healthy and handsome you would not be taking random drugs for your Alopecia and .....
bragging about sexual exploits.
-
-
Just ignore him Aladdin. Personally, I encourage everyone that is offended by him calling us all Jak A's on page 252 to complain to the founders of Alopecia World and have him BANNED from Alopecia World. He shouldn't be allowed to disrespect an entire thread like he has. We don't need or want his negativity about Xeljanz and its users on here.
-
-
To report an abusive poster like DOM, who is inciting intense anger, resentment and discouragement on here, go to the main page. At the top, right under the title "Alopecia World," there is a blue section. To the far right tap on "Report Issue."
© 2024 Created by Alopecia World.
Powered by
