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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Dolly on
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Hi Jcortez05,
I sent you an invite, because I've experienced the same. After birth of my first child it started and it worsened after the second, 2 years later. She's almost 1,5 years now and yet no improvement. I'm losing hair rapidly. I came acrross some other cases of c-section/pregnancy (I had c-section twice), where the same happened. I really start to believe it has something to do with that. Although I have hope that it will get back to normal, I have to be realistic. The way things are going now, I will get totally bald. I have started with LDN since a week, I will have to wait and see if that helps.
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Hi Nicolas, I've started a week, hair is still falling out. But apparently, I have to be on a higher dose, so yesterday I've increased the dose. I hope that from now on the shedding will start to slow down. I've read a lot of positive stories about LDN and alopecia. I hope I will be amongst those that it helped. I did a lot of research and I believe in it. Did you try it and on what dose where you on?
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Now i'm in vitamin d and xelijanz but i wuld try ldn honestly i have not meet a lot of history about ldn and alopecia, have you any link?
Thank you for your nice answer.
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There is a lot of info on the internet. E.g. https://www.ldnscience.org/. There is also a closed group of people that are using it on Facebook, it's called 'got endorphines'. People share their experiences. It's a medicine that helps all kind of autoimmune diseases. Since Alopecia is one of them, we make a good chance. There also another website that share a story of a woman that suffered from universalis and got all of it back with LDN. Link below:
http://www.ldnresearchtrust.org/content/angela-ireland-shares-her-e...
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http://www.ilacabak.com/ilacgoster.php?Id=7295
LDN is very cheap in turkey.
71.08 Turkish lira ($24) for 28 50mg tablets.
Maybe worth a try for people who can't afford xeljanz
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Has any one had any dental work done while taking xeljanz.I have a Dentist appointment to have a cavity filled and a new crown put on Wednesday do I need to take an antibiotic before I go in.
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