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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Jcortez05 on
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Here is my hair after shaving it on AUg 17th ... (don't mind the snap chat filter I was just playing around with it )
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IMG_6608.JPG, 156 KB
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Permalink Reply by Alopecia Mom on
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Thats good to hear. Did you lose most of your hair during the shedding or was it just in spots? I hate to tell her to shave it in case that makes it worse. Why do you think the shaving helped? Her Dr. wants her to take oral steroids in conjuction with the Xeljanz for a short period to hopefully stop the fallout and maybe that will help. What dose of Xeljanz are you on? Thanks for sharing!
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It was thinning really had and falling out every time I ran my fingers through .. I don't think the shaving helped I just did it bc I didn't want to watch my hair fall out again .. I think it just stopped on its own .. once that stressful time passed .. about 2 months later it stopped .. I'm on xeljanz rx 1 time a day
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You said your daughter started xeljanz 1.5 year ago but only started to see good results last 6 months. Did your daughter take the medications for 1 year without seeing good results?
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Hi guys I'm new, do you know if is it really only for alopecia areata?
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it is for rheumatoid arthritis. used also off label for alopecia.
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Thanks for your reply, but I would like to know if someone has got some results in other types of alopecia , I think in this forum They have used it only for alopecia areata or not?Because I have Read Many articLes that it works for areata but I don't believe that anyone didn't use for other types of alopecia
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what kind of alopecia you have?
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Someone told me telogen effluvium,someone androgenetic alopecia , someone alopecia for lack of estrogen, this Last doctor Said that androgenetic alopecia in women doesn't exist, but there's a lack of estrogen.Infact my hormonal tests are ok, I have a lack of Iron and some vitamins and minerals.But Many wome
n have a lack of Iron , I don't think that is it the reason of hairloss.I would like to try this medicine if the Side effects are rare.But I ask you if someone has tested this medicine for any types of alopecia or if there' a trial.
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from what I know tofacitinib is for autoimmune related alopecia only.
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