Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Lindzzej on
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Kevin, I’ve been experiencing joint pain / generalized pain big time but can’t figure out whether its coincidence or not. I’ve done a lot of research and I can’t find anything really on this specifically as it relates to xeljanz. You are the first person besides myself that has mentioned it.
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Permalink Reply by kevin on
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hello if it is a side effect joint and muscle pain, I even saw arthritis,
but those are slight pains they are more intense when I do bodybuilding, -
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how long have you been on xeljanz? Has your cholesterol gone down?
I had various intestinal discomfort acne side effect
shingles but they all disappeared in no time -
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Shad i may be interested in the xeljanz if you still have it. Where did you get it from and what is the dosage you have? Can you call or text me at 519 829 0754?
Thanks so much, I have had AU x 4 yrs now
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Shad please contact me regarding medication. I am in Bc too.
thanks so much
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Permalink Reply by AlopeciaDestroyedMyLife on
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Thanks for all your support it's very much needed.
I will Jeffrey
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Permalink Reply by Xeljanzmiracle on
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Hey ADML, My name is Valeri (Xeljanzmiracle). Our two discussion blogs (yours and mine) are the top 2 posts right now because of everyone's interest in Xeljanz. I have been addressing people's financial concerns & encouraging them to call Xelsource for help. But the other main concern seems to be it's unavailability in other countries. Do you have a suggestion for a woman from UK who can't get a prescription over there? Thanks
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Thank you so much for posting this. I am hoping these become FDA approved for alopecia soon so that they will be covered by insurance. If you can get to Dr, King is the treatment expensive or covered since it is a "trial?"
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Hi Karen,
Glad I could help . Unfortunately I have to pay for the medication myself the study does not cover it and nor will my insurance.
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super exciting news for you!!!!! i'm glad that you don't have any side effects. keep us posted!!
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