Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Permalink Reply by AlopeciaDestroyedMyLife on May 12, 2015 at 10:49am

No , co-pay is only valid in the States. 

Canada benefits from much cheaper costs . 

Permalink Reply by Anisha on May 12, 2015 at 9:20pm

Does anyone know of a distributer in Canada that's cheaper than the states?

Permalink Reply by JHen on May 12, 2015 at 9:22pm
I called a handful of pharmacies and one did have it in stock for $2,136 for the typical months worth (60) pills. This is about $600 cheaper than I have found it here in the US. I can't recall which pharmacy but it was one of many I called.
Permalink Reply by Anisha on May 12, 2015 at 9:24pm

Thanks. If you get a name, please let us know.

Permalink Reply by JHen on May 12, 2015 at 9:30pm

Pharmapassport.com -Credibility unknown
 
They are the ones who quoted me over the phone. I just did a quick google search and its hard to verify how credible they are. If anyone orders from a credible Canadian pharmacy let us know.

Permalink Reply by AU1989 on May 13, 2015 at 4:01pm

Does anyone use CVS Caremark as their prescription drug provider ? I have Cigna with CVS Caremark doing the drug plan.

Permalink Reply by JHen on May 13, 2015 at 4:18pm
I have Cigna too. I am going to friend request you. Got a question.
Permalink Reply by JHen on May 13, 2015 at 5:30pm
Check your messages
Permalink Reply by Summer2000 on May 12, 2015 at 4:16pm

5 Weeks tomorrow on Xeljanz, no change in condition yet.  I'm AT, completely hair free, so it may be a while, if ever.

Permalink Reply by Shanna on May 12, 2015 at 4:56pm
Good luck! I hope you start to see progress soon :)
Permalink Reply by Shanna on May 19, 2015 at 9:12pm
Thought I'd update you guys: saw my doctors today and at 13 weeks in Xeljanz I have full regrowth on my head and about 50% of my brows, lashes, and body hair. No serious side effects so far.
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Permalink Reply by Xeljanzmiracle on August 23, 2015 at 4:44am
Shanna! Finally your BEAUTIFUL face (and hair regrowth) have a name!!! I have been showing your amazing results on Xeljanz to everyone on my phone for the past few weeks. Telling everyone to look you up on Pikore.com thealopeciaexperience. I even mentioned you in my discussion: Starting FREE Xeljanz for AU: My Background on Alopecia World. You and Kyle Rhodes have been my main inspiration for hope and faith in Xeljanz. I tried to sign up to follow you on Instagram but couldn't. I just started Xeljanz 3 weeks ago & now you can follow my progress as I have been following yours. Thanks SO MUCH for sharing your weekly progressive pictures with us. SO INSPIRING!!! Valeri P.S. How do I have my picture show instead of the blank head? I took one to upload but don't know HOW to place it in the right spot. Help!

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