Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Christopher's_mom on
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Well said.
Thank you.
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If your opinion is more important to you than the help this link brings please continue. But don't blame others for what you create but blame yourself. Is there an administrator. Personally this may be my last post. I didn't come here to learn self control. Getting called a skinhead at eight only to be called "white"at forty-six demonstrates my tolerance.
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I don't like getting political, but this American taxpayer appreciates a president who doesn't support my $ being spent on numerous and dumb things such as research involving shrimp on treadmills. Instead, my $ is going toward the advancement of disease and their cures...such as alopecia.
There is money for national security and science. It's not a zero sum game.
I, too, would like to hear from people who have responded to treatment...it would give hope and help. Maybe they wish to forget this dark point in their life, but it would be nice if they checked in now and again.
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Respectfully u know nothing about research as demonstrated with that statement. I work with the leading children's doctors in the world to advance medicine daily. Animals are a necessary part of it.
And regarding our military when our current military funding is more than double the expenses of the 2nd highest nations expenses and ours is more money than china and Russia there is absolutely zero reason to increase our military spending more.
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So you believe you can not find a cure for alopecia? So this is stem cell research?
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If you are asking me Sara, no I don't think we will find a cure. We will find a treatment. Cures are found with viruses and bacteria related issues.But I am not a doctor. I hope I am wrong. A treatment is good anuff for me.
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I wish someone can tell us how long will it take fir treatment to be out thrrr? Is it 2 years 3 years 10 years? Hoping its in near future
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nobody knows this answer my dear. but a good estimate would be 3 years.
timing is not all. I would suggest you don't focus on the delay and timeframe. therapy with biological drugs for autoimmune diseases are tricky. It would be much better to HOPE for multiple good treatments so in case one alopecian is not responding to one particular drug he has other options.
If you compare to rheumatoid arthritis for example some do not respond to Humira so they try Orencia or even Xeljanz (RA has so many different drugs). it is very unlikely that the same drug will be the best treatment for all of us.
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Permalink Reply by Suzie on
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I agree with you Return_Life. I have RA and AA and I have had success with most biologics for RA whereas others do not....the only issue is eventually they stop working. I'm assuming that is why some people haven't responded to the Xeljanz because unfortunately it doesn't work for everyone.
I've had AA as a teenager and it all grew back on it's own within a few years, then developed it again 3 years ago and I've been on Xeljanz for approx. 7 months. All of my patches are filled in. Obviously since it takes so long for hair to actually grow, It's not as thick as it used to be, but I am happy with the growth I've received. I was fortunate to be able to use extensions to help fill in my patches when it was really bad.
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This site is starting to have a negative feeling with all the political bashing.Really let's be more positive with all the research out there now for Alopecia.
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I'm with you Football fan! This is suppose to be a support group, not a political bashing! I see enough of that on Facebook, TV and social media! We need to keep hearing from those who are having success with whatever medication and/or supplements, etc. they are using.
Here is my daily regimen: 5mg of Xeljanz twice a day. Morning smoothing with blueberries, avocado, flax seed meal, olive oil, spinach, banana, 2 Tablespoons of cherry juice concentrate, Almond milk and Kefir; supplements: Viviscal Professional (1 in morning, 1 in the evening); Primrose oil, Fish oil, Nature's Plus Ultra Hair vitamins, Women's Multi-Vitamin, Flaxeed oil, Vitamin D and Vitamin C. I also use
I-Grow laser therapy every other day and I exercise daily! I have RA as well, so I feel everything I take and do is helping both autoimmune diseases.
My patches have all grown in and I cannot say exactly what has worked and what hasn't, but I'm going to continue to do everything I have been doing. BTW I am 51 and only experienced AA twice in my life (once as a teenager and the other 3 years ago); and I've had RA since I was 26.
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