Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

-----------------------------

AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

Views: 927888

▶ Reply to This

Replies to This Discussion

Permalink Reply by Rascalx2 on July 28, 2017 at 6:45am
"During" alopecia? Has your alopecia gone into remission? I want to buy all the shampoo I can, I'll give you thousands!
Permalink Reply by George Buckner on July 28, 2017 at 6:54am
No, i still have but it is almost filled. I have to keep my hairs long.
Permalink Reply by bibby on July 28, 2017 at 7:06am
This shampoo was developed by wizards and it can switch off the t-cells that are coming from your immune system and magically redirect these hair destroying tcells out of your ears and on into the atmosphere. Patent pending by one "harry potter"
Permalink Reply by cws on July 30, 2017 at 9:55am

snake oil

Permalink Reply by IcarusAlopecia on July 31, 2017 at 4:59pm

You're actually just posting affiliate links which is against the policy here.

I wouldn't advise anyone purchase anything from the links provided by George Buckner

Permalink Reply by Lavonne Sandberg on July 30, 2017 at 1:51am

I tried this but was not very effective.

So, i just wear wigs. Some wigs are totally crappy but some are really good. i tried some wigs but they were not comfortable.

I searched locally but they were all same. i also bought 1 online but it was also not good.

Then i was recommended this website in some forum.

So, i bought and this wigs are too good. It is 100% Human Hair Wig. If you want you can have a look then Visit This Website. They are in this business for more than 20 Years. They also have other wig Accessories that you can look. 

They also have Free Lace Wig E Book in which you can learn all about wigs that how to choose, maintain etc.

I hope it will work for someone..

Permalink Reply by Frida Rupert on July 30, 2017 at 3:51am

I really don't mean to come across as rude, and i know i was kind of the one who diverted everyone away Xeljanz with my posts about HCELL, but there are heaps of other threads about wigs and shampoos, I think a lot of us here on this thread are looking specifically at cures involving jaks or other autoimmune related fixes. Its great to hear about shampoos and wigs, but don't want to go off on a whole bunch other unrelated rabbit holes in this particular thread. I'm sorry I kind of diverted the whole subject and again not meaning to be rude, as it was my fault as much as anyone else... 

Just know shampoos and wigs have heaps of threads on here too which would benefit more from posts on those subjects.

Permalink Reply by Patchesforlife on July 30, 2017 at 9:42am
Wow exactly my thought! Please don't come posting about wigs here. I hope I'm not rude too.
Permalink Reply by IcarusAlopecia on July 31, 2017 at 5:02pm

Also affiliate links.

People don't purchase anything from posters who are trying to cash in.

Please report all users who post affiliate links to products.

Permalink Reply by bibby on July 31, 2017 at 7:55pm
Too right. Let's keep this forum for xeljanz only as the topic title implies
Permalink Reply by Frrankie on July 31, 2017 at 8:11pm
So I have been Xeljanz two pills morning and night. I am getting random hairs. Growth is far from cosmetically gratifying but I believe I am responding. My finger nails are stonger. They still chip but haven't cracked. It may be too early and I may just be being optimistic but this random growth is most I have had in years.When a picture is Warrented I will post. That is some time away.
Permalink Reply by bibby on July 31, 2017 at 8:16pm
Hi frankie. Congrats on the response and it certainly sounds positive . How long are you on the 2 pills a day? Are they the 5mg or the 11mg ?

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service