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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by rew on
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Hi frickingau.
I've been looking for information about what you ask for months but I haven't found any clarification about it.
In a previous post I explained how I was about to buy tofacitinib citrate from a lab but at the end of the purchase I was told not to use it for human consumption, just for research. I think they wrote it to protect themselves from a complaint from pfizer, the pharmaceutical company that has patented the drug, but I will never know.
If I can help you or find out anything else about this, let me know.
Greetings and strength.
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so when watching tv I always see advertisments for moderate to severe psoriasis and I always think I wish someday in near future I see an advertisement for moderate to severe alopecia areata..
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I am going to Mexico in december for vacation. Does anyone know whether xeljanz is available there without prescription? Thank you so much
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I read on this forum you could not buy xeljanz in Mexico. Do some research on this thread. I believe you will find the conversation. If you try in Mexico let us know how it goes.
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thank you
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Hello, did you son get biopsy before starting Xeljanz? My daughter is waiting for biopsy result. Doctor said that she will be good responder if biopsy shows inflammation.
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don't all alopecia patients lose hair because of inflammation?
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Permalink Reply by Lindzzej on
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I’ve had alopecia areata for around 20 years...lost my whole head of hair when I was in the 7th grade. I’ve never had a biopsy done, thats why I was curious.
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Update: 27 year old female. Exactly 1.5 years since the onset of my AU. 15 months on Xeljanz, been on 20mg a day for almost a year now. Minimal side effects (only 3 serious colds in that time, and some weight gain and acne). Still have one dime-sized thin area on the right side of my head and missing a little chunk out of one eyebrow. Still wearing a wig in public, but having it in a pony tail is starting to look okay!! May god bless all of you!
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