Xeljanz (Tofacitinib Citrate): My experience on the trial

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.

I thought it would be nice for everyone if I documented my progress on here. 

Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.

The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results. 

I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.

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AW:  Other discussions on Xeljanz / Tofacitinib

https://alopeciaworld.com/main/search/search?q=Tofacitinib

 

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Replies to This Discussion

Permalink Reply by Shad on April 7, 2018 at 6:54pm

Thanks Frida! 

You always encourage me. 

Permalink Reply by kevin on April 8, 2018 at 1:50am

I'm afraid it's stagnant you think its going to grow more because I want to increase to 15 mg

Permalink Reply by inggare on April 8, 2018 at 4:24am

Salut Kévin, je suis toujours en attente du numéro du frère du pharmacien, stp. 

  1. Je vois que ça pousse pour toi, très content. Et bon courage. 
Permalink Reply by kevin on April 9, 2018 at 12:50am

Salut désolé je trouvais plus le papier tien

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Permalink Reply by inggare on April 9, 2018 at 8:26pm

Merci Kevin. 

Permalink Reply by Shad on April 9, 2018 at 7:46pm

But as you said u increased to 20mg, Right?

I'm taking 10 mg, cause so expensive and can't effort 20 mg monthly. 

Permalink Reply by Anna on April 9, 2018 at 7:57am

Congrats Shad! I am envious - I started at the same time as you and I have had no results at all yet. 

Permalink Reply by Frida Rupert on April 7, 2018 at 12:14am

Really good results! 

Permalink Reply by kevin on April 8, 2018 at 1:52am

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Permalink Reply by kevin on April 8, 2018 at 1:55am

can you give me advice the frequency of the steroids that you used

Permalink Reply by Frida Rupert on April 7, 2018 at 12:07am

Not far now to go! The 16 mg should do the trick! The hair has come in so dark which is awesome.

Permalink Reply by okan94 on April 3, 2018 at 12:23pm

Hello friends.I have been using xeljanz for 5 months.I used 10 mg for the first 2 months. I used 20 mg for the next 3 months.But I still do not see any benefit.There are only 5-10 feather-like eyelashes.What should I do ?

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