Forum Discussions (6,516)

Discussions Replies Latest Activity

My Yarn Wig. Seeking Feedback for Creating These for Alopecians!

I'm pretty excited about this.  I've had alopecia since I was 15, so I've been through hiding under wigs for at least 15 years.  I found t…

Started by Dreambird in Wigs, eyebrows, hair pieces, fashion

11 Mar 1, 2018
Reply by Lisa

Will my kid get it? Prenatal genetic testing/counselling

Hi beautiful people I've had Alopecia Totalis for about 13 years now- As for myself, I have made my peace with it, I have a great life and…

Started by Yas in Symptoms, treatment options, research

14 Mar 1, 2018
Reply by SabineTawni

My teenage boy, on Xeljanz for a few years and it's suddently stopped working

Hi everyone, Some sad news to report. My son Billy who is 15 , a patient of Dr King for over 3 years went from nothing to just about 95% h…

Started by Fenster in Symptoms, treatment options, research

9 Feb 28, 2018
Reply by Fenster

Tape gets smell with activity

When I'm with my boyfriend, I'm pretty much in my wig 24/7 and tape that thing down so well.  When I'm active (so maybe heat induces), ther…

Started by eleven11 in Wigs, eyebrows, hair pieces, fashion

5 Feb 25, 2018
Reply by Unfair2HaveHairThere

Madam Madeline.com for best pricing for Eye Lashes and Glues

I have been meaning to post this information for sometime. The above vendor sells Adrell and a whole host of eyelashes and glues at the bes…

Started by Alo-mom in Wigs, eyebrows, hair pieces, fashion

1 Feb 25, 2018
Reply by Unfair2HaveHairThere

What's Your Preference Based On Cost? Synthetic Or Human?

I have had AA for 45 years. (I was ten when I got it, I'm 55 now.) For most of my life, I wore synthetic until college, and then I could fi…

Started by Dollhead in Wigs, eyebrows, hair pieces, fashion

5 Feb 25, 2018
Reply by Unfair2HaveHairThere

Glueing hair to your head

I know a lot about wigs and toppers, but I would like to know more the process of having hair glued to your head. Has anyone done this and…

Started by Alo-mom in Wigs, eyebrows, hair pieces, fashion

5 Feb 25, 2018
Reply by Unfair2HaveHairThere

I found something that works for me.. maybe will for you ?

Hi guys, wanted to share my story real quick then the fix I found. keep in mind I don't know a lot about Alopecia, except that it sucks..…

Started by pepperdust in Symptoms, treatment options, research

2 Feb 24, 2018
Reply by hagster

Use of Cyclosporine

Anyone have any experiences they can share about use of Cyclosprine for AU? Also any side effects experienced? Thanks in advance!

Started by Djp in Symptoms, treatment options, research

6 Feb 18, 2018
Reply by Anna

Alopecia Totalis is much mooooore better than Alopecia Areata

Hey, I'm new on this forum, so sorry if I'm recrudeseing this theme, but am I the only one believing that it's just better to have absolute…

Started by The HIGHGROUNG in Other interests

2 Feb 17, 2018
Reply by pepperdust

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