Comment

Comment by richard on July 15, 2009 at 12:05pm

understand

Comment by richard on July 15, 2009 at 11:55am

i am not trying to offend you, but you come off pushy and rude,like those solicitors from over seas

Comment by Trixie on July 15, 2009 at 11:30am

I consider myself a lot of things but desperate is not one of them.

Comment by Ben Lainhart on July 15, 2009 at 9:54am

Desperate? Wow.

Comment by richard on July 15, 2009 at 8:16am

shiri,
sounds like an advertisement

Comment by Trixie on July 14, 2009 at 7:36pm

Im done with treatments. Was diagnosed in March have had patches for a few years now every time one grows back another one appears. My patches are getting larger and the hair loss is progressing more rapidly. After Clobetasol Propionate .05%, injections, tears and emotional distress I just cant to it anymore. The treatments do not seem to be working at least thats how it appears whenever i comb, wash, or run my fingers through my hair. Im not ready to shave it, I have thought about it. I do wear wear wigs, hats and scarves. Im just going to let it take its course and maybe when it gets to much (or my bald spots grow more) Ill shave it or give myself a mohawk.

Comment by Beth on July 14, 2009 at 6:07pm

Hey guys!! I have had AA for 19 years. I have received every treatment possible. I have currently stopped all treatment and have begun searching for another option ( wig). I have received shots every three weeks for the past ten years. I hate them!!!!!! They do hurt! And for the rest of the day I have a raging headace. I'm done with all the steroids!!
I recently got married and for the first time in my life I am comfortabe with where I am. I finally accepted myself! Good luck with your treatments. Hopefully one day there will be a cure!

Comment by richard on July 14, 2009 at 5:34pm

it is the summer shave it ,hiding it is too much work, 38 w/mohawk

Comment by John Killion on July 14, 2009 at 5:22pm

Thanks, Kara. Thanks for the response. You and I were diagnosed at about the same time. Quite a shock, huh? I had been under tremendous stress for nearly a year before this started to happen. Also, my mother has an autoimmune disorder, so I guess I kinda had it coming. I can tell it is going to get worse before (if) it gets better and I don't know whether I should treat it or not or with what. Thanks again for the input and all the luck to you too!

Comment by Kara on July 14, 2009 at 5:12pm

John I am not a fan of the shots. I have had three treatments with the shots and very little success. I do have new hair growth, however the spots are spreading and I found a new one about week before my third treatment. They do hurt somewhat (in my case my head usually hurt for the remainder of the day and laying/sleeping on the injection spot was uncomfortable). I also have the "dells" or dimple like places on my head now from the injections. They say these will clear up in time....I hope. I was also using the steriod cream (Clobetasol Propionate .05%) but have discontinued that for now as well. I was just diagnosed in April and dealing with this has been a bit of a rollercoaster for me. At first I was willing to do absolutely anything to keep my hair and lots of tears were shed! But as time has passed and my results were not what I was hoping for I have decided to stop treatment and see what happens. Trying to prevent this was only adding stress to my life and making me unhappy. For me, acceptance has given me some much needed peace and clarity. I wish you luck with your journey!

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